Re: Mirena Users out there???
I have HCM and I'm on my first merina (implanted 4 yrs ago). It took a few months before my periods went...
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Pacemakers and ICDs powered by your own heart - In news
Here's something interesting saying that researchers are working on packemakers and icds to be powered by your own heart . . . no batteries so you could...
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Re: How young should children be tested for HCM?
In case you wanted more stories . . . My kids are gene positive and 1 has 2 mutations...
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Re: dealing with boredom
You mentioned making bracelets. Try Peyote bead weaving. It is very fun and easy to learn on your own. It will...
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Re: Echogenic Focus in Fetal Echo & HCM
My first born had echogenic foci in her heart but it disappeared before she was born. ...
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Seidman's latest published gene study . . . interesting
I thought some of you might find the Seidmans team's (the pair studies genetics of hcm) latest published study interesting, it concerns genetics and enlarged...
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Re: Please, let us not forget...
Eve - You brought up a very good point that a husband or family reading this site might think his wife...
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Re: Quick Question
My cordless phone is a V-Tech DECT 6.0. No interference with my icd or anything else. I talk on it using my right...
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Re: Wireless Transmission
Hi Anne
I had the same issue due to having Verizon. The EP dept at my hospital ended up giving...
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Re: ICD shocking 7 times
Thanks for sharing your story. I'm sorry that happened to you. It's my fear every time I go on the treadmill....
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Re: Medical Aler Bracelet
Hi Adam
I've tried several brands of med alert bracelets but it wasn't becoming a habit to wear...
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Re: Genetic testing
Hi Jenn
The cost of my genetic test was about $3,000. They found that I have 2 mutations. To get each...
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Re: Nighttime wheezing and SOB
I don't have exactly what you have but I have had some undiagnosed breathing issues since I was a teenager....
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