Hello everybody,
it's a long time since I last visited the HCMA forum, you know, sometimes you try not to think about HCM all the...
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respiratory arrithmia ?
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Dr. Spirito
No, actually I first learned about him from the list of contributors to the previously mentioned Clinical Expert Consensus...
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Leopard syndrome
My son is almost 3 years old. He's currently taking propranolol on a 6 mgs/kg basis but the average gradient still keeps...
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Myectomy costs
Hello,
Does any of you have a reasonable idea of what costs should I consider in case I decide to have to my son undergo a myectomy at...
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Syndrome-related HCM
Hello,
my son has HCM as a result of the Leopard syndrome, which is caused by the PTPN11 gene, just like the Noonan syndrome. For those...
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Translation for Guido's reply
Hello everybody, given that I posted the original question about where to find major myectomy centers in...
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Where to have a myectomy abroad ?
Actually I hope my 3-year-old son will not undergo any surgical operation, but as the gradient keeps around 40 mm Hg despite propranolol I prefer to get...
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natolol
My son has HCM as a result of the Leopard Syndrome. HCM is currently being treated with beta-blockers, i.e. propranolol. Only, while the beneficial effects...
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