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My Mom...


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  • My Mom...

    My mom died last evening at the age of 63. The official cause of death is congestive heart failure. However, her heart measurements on Echo were consistent with HCM. She has several sisters who are also in heart failure, and a brother who died at a young age in his sleep.
    5 1/2 year old Tyler w/ HCM dx. on 12/8/05 died suddenly in his sleep on 12/2/08.
    7 1/2 year old Katie w/ HCM dx. on 12/18/08, rec'd AICD, replaced on 2/19/09 w/ new lead.

  • #2
    Re: My Mom...

    My sincere sympathy on the death of your mother.

    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
    ICD&Pacemaker 1996
    Heart transplant March 19, 2004 @ Mayo Rochester
    Mom of Kaye.


    • #3
      Re: My Mom...

      My condolences. I'm sure this is difficult for you.

      Myectomy on Feb. 5, 2007.


      • #4
        Re: My Mom...

        My heart is with you....


        • #5
          Re: My Mom...

          my deepest sympathies... i lost my dad when he was 58 (not HCM--it's my mom with HCM, too.)


          • #6
            Re: My Mom...

            I am very sorry to hear of the passing of your mother.
            Daughter of Father with HCM
            Diagnosed with HCM 1999.
            Full term pregnancy - Son born 11/01
            ICD implanted 2/03; generator replaced 2/2005 and 2/2012
            Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.


            • #7
              Re: My Mom...

              Im so sorry for your loss. We lost our Mom 26 yrs ago today. She was 49. HOCM stinks


              • #8
                Re: My Mom...

                Sorry to hear of your loss. Remember her smiles and smile when remembering her.
                Diagnosed @ 48
                Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
                Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
                AICD - Valentines Day '08, Spark Plug replaced 11/14
                After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
                Quietly going insane . . .


                • #9
                  Re: My Mom...

                  I am very sorry for your loss. I am also a bit surprised, a heart failure death at 63 in an HCM family - to me that is tough to take. When you are feeling up to a chat give me a call.
                  May your mother rest in peace and know she was loved!
                  Knowledge is power ... Stay informed!
                  YOU can make a difference - all you have to do is try!

                  Dx age 12 current age 46 and counting!
                  lost: 5 family members to HCM (SCD, Stroke, CHF)
                  Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                  Therapy - ICD (implanted 97, 01, 04 and 11, medication
                  Currently not obstructed
                  Complications - unnecessary pacemaker and stroke (unrelated to each other)


                  • #10
                    Re: My Mom...

                    Sean, I'm so sorry - Linda


                    • #11
                      Re: My Mom...

                      Sean ...Very sorry for your loss.. my heart goes out to you and your family.

                      Dx @ 47 with HOCM & HF:11/00
                      Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                      Lead failure,replaced 12/06.
                      SF lead recall:07,extracted leads and new device 2012
                      [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                      Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                      Genetic mutation 4/09, mother(d), brother, son, gene+
                      Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


                      • #12
                        Re: My Mom...


                        I am so sorry to hear of your loss. I pray that you and your family will be comforted at this time and in the weeks and months ahead.



                        • #13
                          Re: My Mom...

                          I am so sorry to hear about your loss -- my thoughts and prayers are with you!

                          Marki (34) mom to: Quest (15) positive HCM, Zak (10) HCM, waiting on a new heart for 14 months now, Sutton (7) gene negative, and MJ (2) no HCM. Wife to Michael (35). ***Remembering Priscilla (passed on October 31, 1999 @ 33 yrs old), Janice (passed on September 1, 1974 @ 16 yrs old) and Shirley (passed on October 23, 1995 @ 58 yrs old).*** All were from HCM.


                          • #14
                            Re: My Mom...

                            I'm so sorry to hear. My thoughts and prayers are with you and your family.
                            Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.


                            • #15
                              Re: My Mom...


                              There aren't words that will make you feel better, I know that from experience. However, please know that your HCMA family is thinking of you and all of your family right now. We care and we're very sorry.

                              Husband has HCM.
                              3 kids - ages 23, 21, & 19. All presently clear of HCM.


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