If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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Lisa Salberg Find out more about Lisa Salberg
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  • #1

    Example posting

    L. J. Flanigan Sr. passed away June 1953 in Rockaway NJ- he died at home at the age of 43. He was a carpenter and had previously been told he had rheumatic heart. He was a very athletic man.

    T. J. Flanigan - passed away August 1990 in Stevensville MT, age 48- he had been treated for heart failure. He died suddently after spending the day at an outdoorsmen show. He returned to his car and died there. He was an avide hiker, hunter and outdoorsman. He was an extremely athletic man.

    Lori Anne Flanigan - passed away June 1995 in Rockaway NJ at the age of 36. She had been treated for HCM. She arrested in her sleep, there was sussessful CPR and defib. She was in a coma for 5 days and passed away in the hospital. She was an executive assistant at a major coporation and was not athletic.

    *********************************************

    These are examples of postings and the information that is needed to help those in the research field gain a better understanding of SD. Please try to limit postings here to under 300 words. Feel free to post more detailed histories on other areas of the message board.

    Thank you.
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)
    Tags: None
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