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Stacey ROCKS for the HCMA!!!

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Lisa Salberg Find out more about Lisa Salberg
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  • Stacey ROCKS for the HCMA!!!

    A big thanks to all the bands who joined us last night!!! Stacey did a wonderful job, we had a lot of fun and thanks to this event more people are aware of HCM!!!

    04/28/04 - Posted from the Daily Record newsroom
    Playing with a lot of heart
    By Eugene Mulero, Daily Record

    FLORHAM PARK -- Stacey Titus, a business major at the College of St. Elizabeth, loves rock music and helping others.

    Last night she organized her fourth concert at the college which drew about 60 young people to listen to five bands and raise money for her favorite charity.

    Titus, of Rockaway, uses the concerts to raise awareness for Hypertrophic Cardiomyopathy (HCM), the disease she has and the disease that took the life of her mother, Lori Flanigan, nine years ago while living in Rockaway.

    "I miss my mom and I don't want other people to deal with what I went through," Titus said, while collecting tickets at McGuire Hall, where the event was held. "I want people not to feel bad for me but to be aware about the disease."

    After her mother died, Titus's aunt Lisa Salberg founded the Hypertrophic Cardiomyopathy Association, based in Rockaway. The non-profit organization has raised money and brought attention to the disease. Salberg hosts a series of fundraisers throughout North Jersey.

    "Many people have the disease and they don't even know about it," Salberg said. "After my sister died, I knew I had to do something to educate people."

    Shortly after Flanigan's death, Salberg and Titus had defibrillators put in their hearts to help prevent sudden heart failure, a common HCM symptom.

    Last night's concert, billed as Bands with Big Hearts, grossed about $300 with proceeds going to Salberg's non-profit association.

    Sophomore Cassandra Bosquet, of South Orange, attended the concert to learn more about HCM and enjoy the live music.

    "I always love Stacey's events. She brings good bands and we get to learn about the disease," Bosquet said.

    Dari Olsen, a psychology professor at the college, came out to show her support. During one class, she asked Titus to share her story with other students.

    "She's great. She's very inspirational," Olsen said.

    The bands performing included Tonation from South Jersey, Disclaimer from Rockaway, 10 Heads High from New York City, Copperpot from Rockaway, and No Soap Radio from New Brunswick.

    Jarrett Randazzo, Copperpot's singer and guitarist, became involved in the event after Titus contacted him a few weeks ago. Randazzo said he was Titus' neighbor growing up and knew her mother.

    "This is a disease people don't know much about," Randazzo said. "This is a great concert for hanging out with friends and enjoying the music."

    HCM is a condition in which the muscle of the heart is abnormal in the absence of an apparent cause, according to Salberg. Symptoms may include shortness of breath, chest pain, palpitations, light-headedness and blackouts and fatigue.
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Re: Stacey ROCKS for the HCMA!!!

    Another great job, Stacey! Linda

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    • #3
      Re: Stacey ROCKS for the HCMA!!!

      Way To go Stacey! Or should I have said " You Rock!" Anyway you say it , Great job Stacey, You done good! Another inspirational individual moves to the front .Keep up the great work you do and bless you. Pam
      Dx @ 47 with HOCM & HF:11/00
      Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
      Lead failure,replaced 12/06.
      SF lead recall:07,extracted leads and new device 2012
      [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
      Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
      Genetic mutation 4/09, mother(d), brother, son, gene+
      Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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      • #4
        Re: Stacey ROCKS for the HCMA!!!

        I wanna be like Stacey when I grow up!

        Reenie
        Reenie

        ****************
        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.

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