One day down two to go...
Yesterday there were several posters presented on HCM to quickly highlight those of most importance to the daily lives of those with HCM I would have to say 2 posters were most important:
The poster by M.Maron regarding the effects of gradients of more then 30mm drew a great deal of attention (info in this can be found on a seperate thread on this boardhttp://www.4hcm.org/phpBB2/viewtopic.php?t=1436 ). This brought up a great deal of discussion from several prominant surgeons in HCM - I suspect you will soon see a paper on the long term outcomes of pts post myectomy with an attempt to link improved survival rates to long term outcome. Many people are looking at this within the Ablation community... I look forward to a balancing of data to help pts and care providers have the most up to date data to make a treatment choice.
Second was a poster by M. Ackerman (Mayo) re genetics: Prevalence and spectrum of a particular group of mutations... this data show that genetic information is not leading us to a clear picture of what we can expect from that form of the disease. Those with "bad" genes have good outcomes..and those with "good" genes can have bad outcomes...in other words it was clear that much more work is needed to find out the true meaning to genetic infromation in HCM.
There were some other interesting posters but I suspect the 2 I have mentioned will have the greatest impact on future research and treatment in there respective areas of the disease.
More later from Chicago!
Lisa
Yesterday there were several posters presented on HCM to quickly highlight those of most importance to the daily lives of those with HCM I would have to say 2 posters were most important:
The poster by M.Maron regarding the effects of gradients of more then 30mm drew a great deal of attention (info in this can be found on a seperate thread on this boardhttp://www.4hcm.org/phpBB2/viewtopic.php?t=1436 ). This brought up a great deal of discussion from several prominant surgeons in HCM - I suspect you will soon see a paper on the long term outcomes of pts post myectomy with an attempt to link improved survival rates to long term outcome. Many people are looking at this within the Ablation community... I look forward to a balancing of data to help pts and care providers have the most up to date data to make a treatment choice.
Second was a poster by M. Ackerman (Mayo) re genetics: Prevalence and spectrum of a particular group of mutations... this data show that genetic information is not leading us to a clear picture of what we can expect from that form of the disease. Those with "bad" genes have good outcomes..and those with "good" genes can have bad outcomes...in other words it was clear that much more work is needed to find out the true meaning to genetic infromation in HCM.
There were some other interesting posters but I suspect the 2 I have mentioned will have the greatest impact on future research and treatment in there respective areas of the disease.
More later from Chicago!
Lisa
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