today we all went to n.e.m.c. and met with dr.maron i had so testing done and my older son who will be 5 in two weeks none hcm told him that his brother has hcm and and he also has a blockege i was so pround then he said that my 2 year old georgie who has hcm is crazy he beats him up all the time is that normal i was laughing so hard he also said that his brother heart is big because he loves us all so much i was so proud and amazed i wanted to cry because he really wants and trys to understand hcm so after the appointment i was talking with kenny my 5 year old and told him i might have hcm and he told me mom u are strong and u will be ok because u are my hero i just fell apart and he told me mom u know u are special to god and when u are sad just know mom i love u and god will help u if u just pray like i do for my brother everynight but if god needs u home then i will take care of my brother i will bring him to school and then to chuckie cheese to play everyday
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Re: my sons
WOW! WOW! WOW! What wonderful, sad, funny moments those were! I am sure that watching you love and laugh and trust God as you deal with all the stress of Georgie's being sick has given Kenny a maturity and love that go way beyond his age. Thank you for sharing that with us.
Rhoda
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Re: my sons
yes kenny is really a brite kid when we found out about georgie he was the only one who kept it together he was our back bone as one would say i tell him all the time to let mom worry about georgies meds and stuff but kenny knows so every morning when he gets up first words are mom did u give georgie his meds and now matter where we go if some one is talking about georgie kenny will say excuse me my brother has h.c.m. and needs meds he makes shore his brother is well protected they are such best friends we are going bowling today we will see how that goes if i know georgie he will be throwing the balls where he wants (hahaha)
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