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I feel like patting myself on the back...


About the Author


tyreke28 Adopted in 1974, parents told that I had a heart murmur Find out more about tyreke28
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  • I feel like patting myself on the back...

    Hello to all of my HCMA family members,
    I know I have been gone from the board a lot lately but for a good reason. In June of last year a tipped the scales at 293.6 pounds, the higest I have ever been in my life. So I started to to look at things going on in my life and decided it was time for a change. I realized it was time for us to all change when I realized that my then 8 year was 110 pounds, at 4'9" he should have been 85-90. Even my hubby was tipping the scales higher than he wanted to. In November I was diagnosed with sleep apnea and even though I had began making changes it was crunch time in our lives. I had started back to Cardiac rehab a few months earlier and that was helping because I was down to 285 in September when I went back. On Wednesday of next week I will have finished my latest round of rehab and I will be on my own again but I know that I can do this. I started to see a nutritionist in November this has helped, every two weeks. The plan that I am on right now is counting calories, not for the reason that you might think but because I do not eat enough calories. I now have to eat 1200 before I was eating 800-1000. My body was storing those calories instead of burning them.

    Well here's the math for those of you are curious if I am doing good.

    Me: 293.5-236.6=56.9 pounds lost
    Hubby: 258-224= 34 pounds lost
    Tyreke: 110-98= 12 pounds lost (slow for him because he is growing and does not have as much to lose as I do.)

    I am proud of myself for so many reasons, and I am not just talking about the HCM. I am able to fit in clothes that I saved from my "skinny days"....okay skinnier days. Even those are getting too big for me.

    For those of you coming to the conference I hope I am there and if not I will be there with you in spirit. Although the only thing at this point that can stop me from being there is being in the hospital.

    Last edited by tyreke28; 04-17-2008, 09:24 PM. Reason: spelling
    "I will live each day with the love and help of my family and friends."

    Diagnosed w/ HOCM Feb. '05, ICD April '05, Myectomy Dec. 13th, 2005 at NEMC
    Wire fractured, ICD and wire replced on 10/17/2008.
    Adopted in 1979, no medical history passed on other than born with a murmur and leaky valve.
    Married 9 years to the greatest husband that a woman could want.
    Mother to a wonderful 9 year old boy. So far he is negative for signs of HCM.

  • #2
    Re: I feel like patting myself on the back...


    You are an inspiration an wonderful example for us all! Congratulations!

    God Squad co-moderator
    Nothing is as gentle as strength and nothing is as strong as gentleness


    • #3
      Re: I feel like patting myself on the back...

      Nikki, you've done a great job and you deserve that pat on the back! I hope to see you in NJ.

      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.


      • #4
        Re: I feel like patting myself on the back...

        Nikki - Congratulation on being an inspiration to your family & all of us! I know its hard work & you can see the rewards. I hope you feel better and continue to hit all your goals, what ever they are - cause you can do it!
        Diagnosed @ 48
        Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
        Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
        AICD - Valentines Day '08, Spark Plug replaced 11/14
        After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
        Quietly going insane . . .


        • #5
          Re: I feel like patting myself on the back...

          You did it! How wonderful. Keep up the good work.


          • #6
            Re: I feel like patting myself on the back...

            Way to go, Nikki!
            Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.


            • #7
              Re: I feel like patting myself on the back...

              Nikki, good for you. Hope to see you in May.

              Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
              ICD&Pacemaker 1996
              Heart transplant March 19, 2004 @ Mayo Rochester
              Mom of Kaye.


              • #8
                Re: I feel like patting myself on the back...

                Nikki so happy for you and ALL your family. You have worked very hard and deserve a HUGE pat on the back... feel many coming from me.

                Dx @ 47 with HOCM & HF:11/00
                Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                Lead failure,replaced 12/06.
                SF lead recall:07,extracted leads and new device 2012
                [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                Genetic mutation 4/09, mother(d), brother, son, gene+
                Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


                • #9
                  Re: I feel like patting myself on the back...

                  Nikki that is absolutely freaking awesome. You deserve a HUGE pat on the back for your hard work.
                  "Some days you're the dog... some days you're the hydrant."


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