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Hello all! Any Runners/Joggers around?


About the Author


Darren1 My real name is Darren, I have HCM and am a VERY active person that loves to exercise.
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  • Hello all! Any Runners/Joggers around?

    I've been a member of the forums here for several years and am also a runner (4-5 days a week, 5-7 miles per day. 8-10 miles on the weekend). Anyone else here run for exercise? I enjoy discussing the pluses and minuses of being a runner/athlete with HCM as well as any concerns. Yes, there are risks and rewards and each persons diagnosis is different.


  • #2
    Re: Hello all! Any Runners/Joggers around?

    that is alot of running!!!!!! I was a very active athlete up till about 27 years of age, but then all went down hill from there. Even after myectomy and icd implant last december, my heart is so bad I can't even play with my kids (10 mo,2,6years old) hardly. So do some exercise for me because I am not aloud to do anything but walk!!!!!! timmyd


    • #3
      Re: Hello all! Any Runners/Joggers around?

      Hi Darren,
      I’m glad to see that you are still around. I like to run as well, but I don’t run to the extent that you do. I typically only run about 10 to 12 miles a week with 3 miles being the daily max. I do, however, participate in some not so popular forms of exercising such as basketball and tennis. I firmly believe that staying fit has kept me feeling better than maybe I should be feeling. I notice that if I go 2 or 3 days without a decent workout, I don’t feel as great. Anyway, I’m glad to see you back and I hope to hear more from you.



      • #4
        Re: Hello all! Any Runners/Joggers around?

        hmm. they told me "no running/no lifting weights". thats been a standing order since I was dx'd 17 years ago. and I don't think I have what you'd call a "severe" case...it was "discovered" by accident...a complete shock to me.

        but after reading about it, I could see that I did have some symptoms. one of which was being a totally crappy runner. I thought this explained it.

        I made it through Army basic training...barely. (that was a few years before my HCM dx). while during this time of intense exercise, my strength improved...I was able to do more and more pushups and situps. But in all that time, with all the extreme aerobic training, my running did not improve one bit. couldn't go any farther or faster the day I left than I could the day I arrived. (and there was quite a bit less of me to haul around when I left!).
        Luckily, the minimum passing grade is (or wasn't at the time) very difficult. The point was, though, that "everyone else" made great improvements. not me.

        So I wonder what it is...what specifics of the disease still allow for a "green light" on that kind of exercise?
        dx'd HCM @age24, (1989) |Gene + |no family history


        • #5
          Re: Hello all! Any Runners/Joggers around?

          This should be discussed with your cardio. Even though we are a great source to discuss about what we do only an hcm specalist can help you. Pushing it a bit helped me but I also have an AICD. I also was in ROTC and ran alot and I never got faster after four years. Actually, it kept me from graduating with honors because I failed PE. Could not beat a 12 minute mile. But, I could do 50 military style push-ups being a female. But it's ok they all said I was just out of shape!

          Talk with the doc,

          Mary S.


          • #6
            Re: Hello all! Any Runners/Joggers around?

            Simply stated we do not have enough data to know what effects, possitive or negative that extreme activity has on an HCM heart long or short term. It may be many years before we know for sure...if we ever know at all.

            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)


            • #7
              Re: Hello all! Any Runners/Joggers around?

              Celtic, ten years ago I did 9 triathlons and one half marathon in a year. In retorspect, I suspect the reason I would feel so crummy a few hours after finishing was hcm. Now, I keep up only with the cycling part the training. Next summer I am going on a two week backpacking trek with my son's scout troop. I know I can do the single day hikes. Your training regime has given me hope that I can string two weeks of hikes together, to do the whole thing. My cardio has okayed the deal, as should anyone who wants to tempt the fates.


              Diagnosed with unobstructed HCM in 2004 after a bad experience playing tennis
              Graduated to obstructed HCM by Dec, 2008.

              Life outside of HCM: Law, Photography, Tennis, Music, raising kids and camping


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