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  • #16
    I have to agree somewhat with Jim and Tim - you can't give up some things you enjoy in life. I think it depends on the person and to what degree they have HCM symptoms also. I go into afib occasionally and have thought that eating Chinese food (containing MSG) or eating chocolate can make me go into afib..maybe it can and maybe it was coincidental. I have lived for the past 2 years constantly thinking am I going to go into afib and afraid to take a few sips from an alcoholic beverage or eat chocolate which I love! I will admit, I really miss my frequent Kahlua sombreros! What I do now is base it on how my heart has been feeling and if I have had a run of good days, I will have a drink...you can't give up everything you enjoy in life and I've made up my mind that I'm not. I have put off going to Hawaii to visit my brother, for the past year and made up my mind just days ago that I am going. I kept saying...what if, what if....what if I go into AFIB on the plane?? Then I read a thread on the website about lower oxygen when traveling on a plane and may cause tachycardia, etc. It bothered me at first but I can't live my life this way --- My husband and my son have a right to enjoy themselves...I've wallowed in self-pity long enough...
    \"It is not length of life, but depth of life.\"

    Ralph Waldo Emerson

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    • #17
      Good for you Cynthia. I am so sick and tired of being told you can't do this and you can't do that. I think the last time I was up in Boston Dr. Maron got a feel of how it was ruling my life. that is when he told me" do what you can feel like you can do. You have your AICD so I'm not afraid of cardiac arrest. He said that what I did and how much was up to me and that when my limits needed to change I would do it. He said you're an adult and that is how I am going to treat you." So, I guess I finally realized I am at a point I can't do things anymore and I told him. That is when he said then it is time to look at a transplant.

      I know I got a lot of flack from people saying that I overdid it too much. But, I needed to know this for myself. My belief is no one can tell you what you can't do. It is your discision. I did ask him though if I did the right things and he said "Absolutly, you did everything you could have, when you relized you couldnt't do your tech work you took a sit down job. You took every medication there was. Nope there was nothing different you could have done!" I was relieved,

      So, I guess what I'm trying to say it is ultimatly our choice. Wether it is playing that game of basketball, enjoying a drink, or sitting in a hot tub. We have all been forewarned and it is OUR CHOICE.

      Mary S.

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      • #18
        Hot Tub.

        I agree with both of you... Life is a choice. Live.

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        • #19
          Hi everyone,I think that(atleast from my experience) their has been alot of conflicting opinions from drs etc.I went to see one cardiologist,and when I left I thought he was going to recommend a funeral director.all that accomplished was to scare me half to death.I have formulated a plan I try and stay active.I walk almost everydaysometimes slow and when I feel good I walk a little faster.I have noticed that since I have been walking I can go further and feel better in general.for example a In may june of last year I couldnt walk a mile.now I have walked 4.5 miles with no symptoms.I think that I need to walk a fine line.I cant do so much that I stres out my heart,but I need to graduallybuild up my endurance so that I can do things without my heart stressing out.I believe that if I stay sedentary not only will I gain weight,but my heart will have to work harder.I want my heart and entire circulatory system to work less,and that can only happen with activity.slow gradual and deliberate activity.If I stay on the couch,The day might come when my getting off it is not my choice anymore.feel good mike ..I just wanted to add that I know their are those of us that cant do much right now,and Iam not speaking to them,I have spent days in the past where I could not get out of bed,and to all of those that are having a difficult time right now I send you my prayers.take care mike
          One day at a time.

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          • #20
            Exactly!

            Mike,

            You have taken the words right out of my mouth! Couldn't agree more...

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            • #21
              wow, MIke! good for you! I couldn't agree more...I am trying to lose weight so my heart won't have to work as hard...it does have to work extra hard when you have excess weight to carry around. It's nice weather now and am going to try to walk as much as I can. Mary, that's pretty much what Drs.Maron and Udelson had told me at my first visit with them 2 years ago...Dr. Udelson said live your life..the only restriction is mountain climbing!
              \"It is not length of life, but depth of life.\"

              Ralph Waldo Emerson

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              • #22
                hi Darren good to hear from you.I remember a few months ago you had posted that your son might/or did have hcm.I was wondering how you and your family are doing.also you had posted that you cant walk without your heartrate getting up to 100bpm.before beta blockers my resting h.r. was probably 100bpm.now thank God its around 55.take care mike ps I would love to run 5 miles again.enjoy every minute of it.I definitely took my health for granted.take care mike
                One day at a time.

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