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The Past Year


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Toogoofy317 non-obstructed hcm, AICD 11-01-02 and 10-6-05 Find out more about Toogoofy317
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  • The Past Year

    Well, looks like I've made it through another year. It has had its ups and definatly its downs. There are days that I curse this disease but on most I live my life the best that I can. My life has not been easy but I still feel very fortunate in light of it all. I have made friends that I would have never met and people who have changed my life dramaticly for the better. Sometimes I think though what would my life be if I hadn't had all of this happen to me. First, impression would be that life would be wonderful. After thinking though I like my life the way it is for people like Burt, who is my surrogate grandfather and Jim my twin even though we are quite some years apart and Aunt Lisa always telling me to slow down and drink water, and of course all of the others who coach me along day to day. This family I would not have known if I had not had this disease. So I would not change anything.

    I did a little writing not to long ago and I dedicate it to all of my HCM family.

    In the past

    I was asked one day.
    If you could change your life in any way,
    Would you change it?
    I didn’t even think for a minute.

    The answer was already in my mind,
    And No was the only answer I had to find.
    But what if you could take back all of that pain?
    And know your strife was not all in vane.

    If I did reclaim the days of past,
    And be able to change my life just that fast.
    I may not have met my heroes
    Who never treated me as a zero.

    If I changed my past days,
    I would not be the person I am today
    And as I look back on my history,
    I realize just how my story,
    Was made better by the people in my past.

    Mary S.

  • #2
    Re: The Past Year

    Well sweetheart,
    You are a beautiful person and I am proud to be your ‘surrogate’ grandpa. Go have a wonderful birthday and continue to enjoy each day as it comes.

    The only poem I can think of at the moment is –

    Roses are red,
    Violets are blue
    I’m schizophrenic - - -
    And I am too.

    Love from,


    • #3
      Re: The Past Year

      Happy Birthday Mary. I hope it was a great one. Lets hope next year will have more good times than bad. I loved the poem. keep smile on your face and a song in your heart and all will go better.
      Donna B. HCM & ICD. 2 sons with HCM. Brother passed away from HCM at the age of 39. Mother has HCM.


      • #4
        Re: The Past Year

        That was very nice and I could not agree more. As for Aunt Lisa... I have lost count as to how many people call me that now, and I love it everytime I hear it.
        For those who have no idea what I am talking about allow me to explain. When Lori died (9 years ago tomorrow) My niece and nephew came to live with my parents and then with me. They alway called me "aunt Lisa" as did all of their friends, teachers and everyone who knew them and us. To this day I will run into people in a store who were friends of John and Staceys and they smile and say "HI Aunt Lisa!" I must admit many have grown and change I do not alway remember who is who - but I do know that at one time they were a special part of my life and I will alway enjoy being "aunt Lisa" to anyone!

        Mary - YOU I would NEVER forget in a million years...now drink your water and take care of yourself!

        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)


        • #5
          Re: The Past Year

          Mary , thank you for sharing your poem and your birthday with us. Hope you had a great day!
          Lisa , My thoughts and prayers will be with you and your family as you remember Lori and celebrate the years that she was with you. Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin