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Hi everyone. Well I have left a few other messages on this board lately about me not being able to breathe well at night and having to prop up my pillows. I emailed my Doctor in Boston at Brigham and womans hospital thinking he wouldn't answer me till tuesday due to the holiday weekend. But boom he answered me on monday. He said my symptoms are serious and Now I have an appointment with him next monday. I had an appointment with my local cardiologist today and they started me on lasex 20 mg. They don't see any swelling in the ankles but they are doing it as precautionary.My doctor At Brigham is considering about listing me 
for a heart transplant of course it needs to be approved by a number of different doctors before this occurs. But now I am taking matters into my hands. Nothing is etched in stone here. But let me commend Brigham and women's hospital and Portsmouth hospital because they are great facilities and have great Doctors.I guess I am just getting scared. It's normal.
I have nonobstructive cardiomyopathy My dad's mom died from heart failure when he was 14. And almost all of his brothers died from congestive heart failure. My half brother had a stroke then a heart transplant and my dad had a heart transplant.My cousin had a heart transplant and she passed away. I have an Icd and My friends sometimes call me a bionic woman lol. I am still trying to be but with all things thrown at me sometimes it is hard. I am going to try to see if I can get an appointment with NEMC if I can get a reference then let all my cardiac doctors talk. I am so scared. Thanks for all your support. God bless you all and thank you lisa for creating this group.I had a stress exercise bike test a few weeks ago and my oxygen was less than normal that is what worries my doctors too so that's another reason for consideration of listing me also.
Sincerely
for a heart transplant of course it needs to be approved by a number of different doctors before this occurs. But now I am taking matters into my hands. Nothing is etched in stone here. But let me commend Brigham and women's hospital and Portsmouth hospital because they are great facilities and have great Doctors.I guess I am just getting scared. It's normal.I have nonobstructive cardiomyopathy My dad's mom died from heart failure when he was 14. And almost all of his brothers died from congestive heart failure. My half brother had a stroke then a heart transplant and my dad had a heart transplant.My cousin had a heart transplant and she passed away. I have an Icd and My friends sometimes call me a bionic woman lol. I am still trying to be but with all things thrown at me sometimes it is hard. I am going to try to see if I can get an appointment with NEMC if I can get a reference then let all my cardiac doctors talk. I am so scared. Thanks for all your support. God bless you all and thank you lisa for creating this group.I had a stress exercise bike test a few weeks ago and my oxygen was less than normal that is what worries my doctors too so that's another reason for consideration of listing me also.
Sincerely
and let me know how you make out
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