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Does anyone here have HCM as well as Diabetes?

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Ivan Find out more about Ivan
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  • Does anyone here have HCM as well as Diabetes?

    I am also a diabetic and I would love talk to someone who has both HCM and Diabetes. When my blood sugar gets high I get really winded.

  • #2
    Re: Does anyone here have HCM as well as Diabetes?

    I was diagnosed with HOCM in 92 and diagnosed with diabetes in 02. I am so screwed up right now, it is not even funny. I have not felt well in months and very desperate to feel somewhat normal. I am always looking for solutions in my quality of life and have come up empty each time. I am about to have my second ablation from a very well known cardiologist here in Michigan who is very familiar with HOCM/HCM patients. In two weeks I seean EP to double check both devices before I am scheduled for an Angiogram to determine the best possible route to go after a rebuilt septal artery. WOW

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    • #3
      Re: Does anyone here have HCM as well as Diabetes?

      I have HCM and am a diabetic on Glyburide and newly on Lantis – a long lasting insulin. I am also hyperlipidemic and renal to name just a couple of the other complications, but the thing that screwed me up the most of late has been my bleeding hemorrhoids. That just saps the energy right out of you. For a while there I could lay down or sit. Anything more strenuous, like getting up to go to the bathroom, would have me huffing and puffing like a steam calliope. I’m addressing the problems, and since getting out of the hospital on January sixth, (my seventh stay in eight and a half months), I’m feeling pretty darn good.

      When my diabetes was running rampant – had a recent hemoglobin A1c of 8.8 – and the world seemed uphill. That’s when I started the Lantis, and have gradually built it up to the current level. I feel much, much better now that I’m posting quite respectable blood sugar levels. You have to work slowly and carefully with diabetes or you could wind up going hypo and be mistaken for a drunk, or pass out altogether.

      Do you know where you stand on your blood sugar levels, and what are you doing about it?

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      • #4
        Re: Does anyone here have HCM as well as Diabetes?

        Well, I have you folks beat! I've got HCM, diabetes and tethered spinal cord as part of my spina bifida------

        My heart problems got much worse because I was taking Avandia. Don't take this medication! I switched in the Fall from the pills to insulin injections and "lost" 12 pounds of water weight in2 days. I'd been complaining about water retention for months and none of my Doctors thought there was any problem with my medications. I found out the truth about Avandia from the newspapers-----

        Injections are a pain, but I am convinced that it is healthier to inject yourself with insulin than to take the pills, which have all kinds of odd effects on the body.

        I had an ablation in May 2003 and with that success plus getting rid of Avandia, I'm feeling much better and I'm building up my exercise regime. I am now doing 30 minutes stair climber, 30 minutes treadmill, 30 minutes exercise bike at the gym every other day. I go somewhat slowly, as I always have, aiming for endurance. I am very pleased that I am able to do this much. I didn't think I'd ever get back to this level of exercise with all the problems and the 50 operations I have had. I'm now 57---and amazed that I have survived this long!

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        • #5
          Re: Does anyone here have HCM as well as Diabetes?

          There are many HCM patients who are also diabetic. As diabetes is so common it is exepected to see this happen.

          Best to all!
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

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          • #6
            Just now i have join with this community. Actually i don't have proper knowledge about diabetes. Before meal my blood sugar level 4.5 and after meal my blood sugar level 7.9 . Is it diabetes or not ? Please let me know. If it possible please you give me a blood sugar chart. I will join with you again. Thank you so much for your time.

            Regards

            Greek

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            • #7
              Dear Greek....
              This is a forum to support individuals and families dealing with the Diagnosis of Hypertrophic Cardiomyopathy( HCM). Though many people with HCM have diabetes coincidently, Diabetes does not cause HCM nor does HCM cause diabetes.
              If your concern is whether or not you have diabetes, I recommend you see a physician and discuss those concerns....He/She can order a simple blood test and give you guidance in that area. If you do indeed have diabetes there are many valid associations to connect with to get information and support from
              Best of Luck to you
              After years of symptoms:
              Officially Diagnosed HOCM 2006
              Myectomy 3/11/13 at non-COE
              Extended Myectomy 7/23/14
              At Mayo with Dr. Joseph Dearani

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