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Does it get easier


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Cappy HCM and myocardial bridge patient, also have primary progressive MS Find out more about Cappy
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  • Does it get easier

    Having been only recently diagnosed a few months ago (March 7th) and am having a helluva time adjusting to life with a chronic illness.

    So, does it get easier with time?

  • #2
    Re: Does it get easier

    Hi there,

    I was only diagnosed in April 2002 and then had my myectomy in August 2002. I still find myself at times trying to 'adjust' to life mentally (not to mention physically).

    Here are my thoughts and experiences with this but I respect that it is different for everyone: The process seems to go in cycles, basically following the grieving process we often hear about: shock & denial, anger/trying to bargain it away, guilt, sadness/depression, and acceptance. For me it goes through the grief cycle because in a sense I feel I have 'lost' what I perceived as my idea of being completely healthy.

    It seems to be getting easier for me, some days more so than others. I often find that I'm making another 'round' through the stages and try to be patient, it isn't always easy though -

    Time does make a difference and being able to move forward in life in all the other ways you are able to will also help out.

    Hope this was helpful and not filled with too much psycho-babble!
    All the best,
    Lynn Stewart
    HOCM 4/2002
    Cleveland Myectomy Crew 8/2002


    • #3
      Re: Does it get easier

      In short... Yes I believe it does. Yes some days are harder than others...and it may take some time to balance medications but Yes...it can get better.
      You must be fair to yourself, your life has been changed forever only a few short months ago. Give yourself time to learn, adjust and live again.

      Being diagnosed at 12 I Know I went though many peaks and valleys in my understanding and acceptance of HCM... I have had over 20 years to adjust so I guess you can call me an old pro...but the truth is there are still days I want to scream..."it is not fair!!">>>BUT THEN it really does not change anything does it?

      Give yourself time... it will get better.

      Be well,
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


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