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Thanks for all the advice


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  • Thanks for all the advice

    I was the squash player who asked the question could I keep playing with HCM. I have know had a stress echo which showed a comparitively rare form of HCM - at the top and back of about 20 % of the heart. My heart specialist (in Auckland New Zealand) has said he can't really recommend I keep playing. But I said if I stopped I would put on weight and my cholesterol would go up. His answer was "yes we don't want to create a problem>" My heart muscle has thickened to about 20 mm. He is sending my findings over to colleagues in the United States for a second opinion. In the meantime I have got back on court on a reduced playing basis. I have bought a heart monitor and aim to keep my heart rate below 180. I have played one competitive match which lasted just over 1 hour. My heart rate reached 170 a couple of times, but it was not a strenuous match. Interestingly my heart rate was around 90 when I walked on the court, compared to 75 in a social match. Shows what adrenalin does! I have still shown no symptoms. My son, my sister and her kids are now being tested.

  • #2
    Re: Thanks for all the advice

    Rob, I'm glad you're following through with this. I just wanted to share with you the recommendations that my husband was given when he was diagnosed with HCM. He is active duty military in the US and was told that they don't want his heart rate above 110 if possible. He is now exempt from physical training and annual physical evaluations. (Not doctor evaluations but from tests that evaluate how in-shape the military is.) He has an implanted defibrillator and it's set to shock him when his heart reaches either 160 or 180 beats per minute. I can't remember which. Please continue to follow up with your doctors and see what they recommend for you long term.


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3
      Re: Thanks for all the advice

      Rob, ask your cardiologist what he wants your top heart rate to be. 170 -180 is pretty high. See what he thinks about those numbers. Best wishes, Linda


      • #4
        Re: Thanks for all the advice

        I am glad to hear that your doc is seeking out help with your care. It is nice when someone admits they need help in a tricky situation.
        work with your doc on your activities, and do be careful.
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)


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