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Shortness of breath

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Midge Rollins Heart transplant March 04. Prior to that I had Hypertrophic Cardiomyopathy. I am an independent Norwex consultant. Visit my web site www.midgerollins.norwex.biz Find out more about Midge Rollins
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  • Shortness of breath

    Does anyone else have SOB when bending over. This is a new symptom for me and am wondering if anyone else has experienced it. I do realize with my advanced HCM I may be more symptomatic then others but this bending over and getting SOB is ridiculous. I now sit to get things out of my bottom cupboards. Thanks for any input. Of course maybe if I rested a bit more it would help. But we all know that there is no rest for the wicked. I am afraid to stop may not get going again. HA
    Midge

    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
    ICD&Pacemaker 1996
    Heart transplant March 19, 2004 @ Mayo Rochester
    Mom of Kaye.

  • #2
    Re: Shortness of breath

    Hi Midge,

    I've experienced that for about the past year now. When I bend over, I get SOB, and dizzy. When I stand up from bending over, I get pvc's, what I call "fuzzy spots" in my vision and feel like I'm going to pass out. Sitting does make it easier, but I've even experienced the same when bending over while sitting!

    You're not alone on this one!

    D
    HOCM, Septal Myectomy 10/02 (Mayo Clinic), Medtronic ICD 10/07, TIA 10/07

    Comment


    • #3
      Re: Shortness of breath

      Midge,

      Because it is a new symptom for you I think you should consult your cardiology team to see whether they want to see you to figure out what has changed in your heart. It might even be medication-related.

      To answer your question, yes, I have become SOB when leaning over for many years now. In public I draw a lot of attention because I have to kneel to do anything much below waist level; as long as I don't bend at the waist I will keep breathing normally. In the grocery store it is particularly interesting because I buy healthier foods with less additives which are--you guessed it!--usually placed on the bottom shelf. You should see the expressions on strangers' faces when they see me kneeling in front of the shredded wheat!!! And they have to dodge my feet which are sticking out into the aisle. :P

      With me it is related to the septal obstruction. It's probably been worsening but at a slow & steady rate. Yours sounds like a fairly sudden change. Take good care of you,

      Pat

      Comment


      • #4
        Re: Shortness of breath

        Hi Midge,

        I defnitely agree that since this is a new and fairly 'sudden' developement of symptoms that you need to check it out with your specialist. However, if it helps to have 'company' in your symptoms I'm in the club with you as well.

        My sypmtoms with bending or squatting prior to my myectomy included my vision 'blackening' upon standing, a strong feeling of pressure in my head (like you'd get when as a kid when you'd stand on your head too long...actually, maybe that's what's wrong with me today! ) and general increase in heart rate and breathlessness. Post-myectomy I still have a sense of pressure after a length of time squatting or bending over and some increased heart rate and breathlessness but it is much improved (and no more 'blackening' of my vision but still some fuzzy spots).

        Here is the understanding I have of what happens (and please, ask your doctor to explain it, as I'm not great at even layman's explanations! ). The heart already has less space for blood to travel through from HCM and when you bend over/squat down you decrease blood flow through the major artery at the bend of the leg causing a vasovagal effect. (The same thing you get when bearing down as if having a bowel movment). This vagal movement constricts the heart further so even less blood flow can get through it. One way to ease it from happening is to 'kneel' down on one knee or sit. Of course this is all assuming that the person's knees are able to manage that.

        My mom recently saw me bend over my 3 year daughter and then stand up and she said, "does that bother you to do that?" and I asked her why she questioned me. She said, because your face just looks so strained when you do that! I guess sometimes HCM isn't a 'faceless' disease huh?!

        Hope this helps but do check in with your doc!
        Stay well,
        Lynn
        Lynn Stewart
        HOCM 4/2002
        Cleveland Myectomy Crew 8/2002

        Comment


        • #5
          Re: Shortness of breath

          Hi Midge , Count me in . Yes I have the SOB on bending over and for any other activity as well and all the other symptoms reported by the other "postees" ( sorry for not saying your names,)before me. The SOB was actually the recurrent and persistant symptom I was experiencing for about a year before I was diagnosed with HCM. This symptom should be checked out asap. I later found out that I had been experiencing bouts of acute CHF and had been eroneously diagnosed with upper respiratory infections and even with pneumonia. I 've since learned that it was CHF . I have also read and learned that as cardiomyopathy advances ,whether it be from another cardiac condition or HCM, CHF, unfortunately can develope. This added diagnosis requires meticulous management as the meds used are usually contraindicated with HCM people. So please be safe and get checked out. There should be rest for all the wicked! Take care ,Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

          Comment


          • #6
            Re: Shortness of breath

            I too join the club and I can tell you that a large % of those with HCM also tell me they have these issues...it is all part of the "fun of HCM!"

            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

            Comment


            • #7
              Re: Shortness of breath

              Thanks everyone. I see the transplant people on June 12th again. I certainly will mention it. With my diastolic heart failure I occasionally do increase my Lasix. Sort of go on a day to day basis. It is so nice to go this board for support and understanding.
              Midge

              Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
              ICD&Pacemaker 1996
              Heart transplant March 19, 2004 @ Mayo Rochester
              Mom of Kaye.

              Comment


              • #8
                Re: Shortness of breath

                Count me in with SOB with bending over. That was one of the first things that sent me to the cardiologist. Not only with bending over but with even getting dressed in the morning. I had to lay down for 10 or 15 minutes after these activities to rest up. Kathy

                Comment


                • #9
                  Re: Shortness of breath

                  Midge,
                  Don'[t know if this will help but I have had similar problems and compression stockings were recommended - they helped - by decreasing the amount of blood volume needed by the extremities. I wear 30 mg pressure stockings. Hope otherwise all is well.
                  Chuck B

                  An inch is a cinch, a yard is hard

                  Comment

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