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What type of work do you do

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phantom6624 Diagnosed HCM 10-10, ICD, 1-17-11 and nothing else yet so far Find out more about phantom6624
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  • scottonbike
    replied
    Re: What type of work do you do

    Hello

    I would suggest two things.

    You can take a test that will give you an idea of what kind of jobs would fit you and your personality. I thought it was a lot of BS until I took the test and realized it had jobs that I have never even thought of. I had never heard of a stationary engineer or a few other jobs that it had suggested for me. I looked at the stationary engineer job and really thought about it, and then my old job recalled me.

    This is very obvious but look at growth jobs. No reason to look into a job that has no potential.

    Scott

    Leave a comment:


  • Moosedreams
    replied
    Re: What type of work do you do

    Dear Phantom:
    I am a CPA so desk/computer work is what I do. Not a real issue post myectomy as far as physical needs. I am lucky that way.

    However, a CPAs work load can be large and stressful. I am trying to cut back but I went back to work 5 weeks post myectomy and at 6 weeks I was doing 10+ hour days. Pretty wiped out at the end of the day. Recently had an AICD and was back to 12 hours a day in the week after. Again really wiped out!

    I am trying dillegently to hire someone to take the load off but it is hard even with getting a zillion resumes to pick the right person. I am really looking forward to being able to step back a bit, lower the stress and enjoy life a little more.

    I wish you luck in your upcoming changes. I am sorry you can no longer do what you had been doing and had hoped to continue. HCM does leave a wake in its path for all of us.

    Toodle pip... Moosedreams

    Leave a comment:


  • CarolinEOregon
    replied
    Re: What type of work do you do

    I am in an opposite situation as the others that have posted. I was a wife and mama for 20 years when I had to back to work. I had observed about a dozen sleep studies and thought I could do that. Well it required school, although it doesn't at the moment and will again in the future, so I spent 3 months applying for scholarships. It is kind of hard to pay for school when you don't have any money! I received an amazing scholarship that paid for everything. I went to school for a year, before my HCM began acting up. I quit school and got a job. I worked for just a few months before HCM took over.

    I have only been back to work for a couple of weeks, since recovering from my myectomy in September. My recovery has been long and painful, although I have not had any major complications, just a lot of pain.

    It is a good job if you are a night owl and are able to sleep during the day. Full-time is three 13 hour nights a week. There isn't any heavy lifting. If you work in a hospital vs a stand alone lab the shift differential is substantial (as much as $5/hour on the weekends where I work). A year of school and I make about $25 an hour in a very rural part of my state.

    I am back up to working two nights a week, home schooling four teenagers, wife to the youth pastor at our church and mama to foster children ages 9 and 5. My stamina is returning, and all is improving.

    If you are interested reserach...Polysomnography Technologists in your area.

    Carol

    Leave a comment:


  • Lumax
    replied
    Re: What type of work do you do

    My situation is similar to yours. I was an airline pilot. After diagnosis and ICD I lost my medical and therefore my job. I love aviation and wanted to stay in the business so I am now an instructor and teach people to fly in flight simulators. Not nearly as much fun but it will have to do.

    Leave a comment:


  • mandksiders
    replied
    Re: What type of work do you do

    I am a special education teacher, because I teach special education I have to be trained in doing restraints on students, but because of my ICD (don't want to risk a head butt to the chest or a punch, etc) and the fact that many of the students are bigger than me and weigh more than 50 pounds (my lift restriction), I can no longer do the restraint aspect of my job. I'm okay with that......I'm only 5'1 and don't weigh a ton, so me doing restraints was sometimes comical.

    -Kaye

    Leave a comment:


  • mtlieb
    replied
    Re: What type of work do you do

    I'm an archaeologist and had to give up fieldwork after my HCM diagnosis. It's a much more physical job than what most people think. Hauling large buckets of soil and rock around, digging with shovels through compacted soils, and long hikes into remote areas with heavy equipment strapped to your back. Though the biggest concern actually was that since we often work in areas with difficult vehicle access and/or no cell coverage it would be impossible for help to arrive in time if something did happen. So I went back to school, almost made that my career lol (it's taken me over seven years to do it) but I will finally graduate this coming May. It really sucks to give up something you love and are good at because of HCM, but in actuality it's opened up new doors and it's kinda fun to start all over again. Scary-fun, but nonetheless I'm glad it happened.

    Leave a comment:


  • LindaSo
    replied
    Re: What type of work do you do

    So sorry to hear that. I do know that you are not the only person who has been in this position. Hopefully others can respond and share how they handled it.

    Do you have a Vocational Rehab office in your area? I might suggest that you look them up, go thru what you can and can't do and see how they might be able to help in terms of education/training for a new career.

    Best of Luck
    Linda

    Leave a comment:


  • phantom6624
    started a topic What type of work do you do

    What type of work do you do

    I was wanting to know what type of employment some others have with HCM. Since beeing told I have HCM and need an ICD I will no longer be able to do my job. I was a truck driver and my doctor has had me off work since Dec. 20 and pulled my medical card after blacking out while driving the semi. All I have ever done is hard pyhsical labor like construction, mechanic and so on. I went back to driving due to back and knee.

    Sounds like back to school to me but I have no idea for what. It seems that what I like and what I can do drastically different.

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