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Bob in Texas Find out more about Bob in Texas
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  • Seeking Advice

    Hello,

    I have been back to work for about three weeks and it has been very rough getting through the whole day. By around 1:00 I am extremely fatigued and get very dizzy walking through the halls. Some people have noticed me catching my balance while walking and getting up from my chair. The big test was when I was giving a training session last week. While I did it, I had to struggle answering questions and being on top of things. Every night I come home extremely tired and have been in bed at 7:30. How much worse can this get? I try to go to the gym to jump on the bicycle for about a half hour but after 10 minutes of pedeling I am very dizzy with SOB and when I get off the bike it takes me a minute to get my composure. I was told by my HCM Specialist to stop exercising when I feel any symptoms. Well I do not last very long on the bike. Just wanted to know if anyone has experienced the fatigue, dizziness and sob with the littlest extertion.


    Bob
    Last edited by Bob in Texas; 01-31-2010, 11:46 AM. Reason: spelling
    Diagnosed HCM 03-2009
    6-2009 Evaluated at Tuft's ICD/Pacer implanted/diagnosed with DD and severe scarring/no obstruction
    8-2009 Evaluated at the Cleveland Clinic/Myectomy recommended/gradient w/Armyl Nitrate
    10-2009 Myectomy CCF
    11-2010 Approved for Transplant Listing

    "I no longer live but exist" Bob in Texas.......

  • #2
    Re: Seeking Advice

    Bob, I would call CCF and let them know what is going on and that it is not getting any better. Are you over doing. Maybe 1/2 days for a week or so would be in order for you right now, and do a couple of 10 min times on the bike instead of one long one. Baby steps.
    Midge

    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
    ICD&Pacemaker 1996
    Heart transplant March 19, 2004 @ Mayo Rochester
    Mom of Kaye.

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    • #3
      Re: Seeking Advice

      Bob,
      I know that Dr. Maron just changed your medications, so give it some time. And Midge's suggestion about several 10 minute rides certainly makes sense, however, I know that you can't get to the gym several times a day. Perhaps a 10 minute ride, a 10 minute walk. But, please don't set your mind up for failure. Just go and do 10 minutes and have some success. And by all means, if things are becomming more problematic, give Dr. Maron a call.
      Onward and Upward !

      Diagnosed 4/07 HCM with fixed & dynamic obstruction
      Myectomy with resected cordonae tendonae 4/08 CCF
      ICD 10/08

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      • #4
        Re: Seeking Advice

        Midge,

        I saw Dr. Maron about two weeks in Boston and he has me on a new drug and knows about my condition. It has been three months since my myectomy at CCF I should be able to get through the day by now. I am taking things very slow but have to work, not much sick time left due to being out two months after the operation. CCF is also aware of my condition and wanted me to fly out to see them several weeks ago. Sticking with one HCM Specialist to make things easier.


        Bob
        Last edited by Bob in Texas; 01-31-2010, 07:30 PM.
        Diagnosed HCM 03-2009
        6-2009 Evaluated at Tuft's ICD/Pacer implanted/diagnosed with DD and severe scarring/no obstruction
        8-2009 Evaluated at the Cleveland Clinic/Myectomy recommended/gradient w/Armyl Nitrate
        10-2009 Myectomy CCF
        11-2010 Approved for Transplant Listing

        "I no longer live but exist" Bob in Texas.......

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        • #5
          Re: Seeking Advice

          Brian complains of dizziness. He had it prior to surgery quite severe, enought to nauseate him, sometimes just sitting in the chair watching TV it would occur. It only last few min then would go away with no pattern. We thought it was the maxed out dose of lopressor. Now after surgery same thing, dizzy even when sitting in short episodes... thinking side effect of narcotics... I will talk to EP study guys tomorrow, but wondering if dizziness in normal issue with HCM?

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          • #6
            Re: Seeking Advice

            Dizziness is a common description for many different feelings.Yoga is believed to be an effective cure for dizziness.
            __________________________________________________ ________
            Looking for CPAP mask in Toronto, Treat sleep apnea in Toronto, Sleep Apnea Treatment Toronto?

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            • #7
              Re: Seeking Advice

              Dizziness should always be discussed with your doctor.

              How is Brian feeling now?
              Reenie

              ****************
              Husband has HCM.
              3 kids - ages 23, 21, & 19. All presently clear of HCM.

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