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A Little Update


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Heartmans Wife Find out more about Heartmans Wife
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  • A Little Update

    Hi All-

    I'm finally taking the time to write - something I should have done 2 or 3 months ago. Anyway, I wanted to take the time to say that I am praying for everyone on the board even though I may not always post the messages of support that I should.

    My Father passed away on July 17th of this year. He was 84 years old. We had known for about a month that he would probably not make it - heart attack, congestive heart failure and dehydration at the same time, coupled with a blood infection (septicemia).

    He had the nurses call for me about 5 days before he passed and I left work for the hospital. Everyone at work was great - they said that I should be with Dad and to take all the time that I needed.

    Anyway, the great thing is that Dad had his mind until the minute that he died. I spent about 21 hours a day with him, leaving only to take a shower, put on fresh clothes and lay in my own bed for a few minutes. During the time I spent with him we talked like we had never talked before. It was wonderful. He even told me I wasn't allowed to cry for him - he was ready to go to a better place and I was to rejoice for him. I asked him if I could rejoice for him but cry for me once in a while. He said, "Okay, it's a deal!"

    Thanks for listening to my story - sorry it was so late in coming, but I knew you'd all understand.

    Also, we just got back from a great appointment in Boston. Will post more when I have another lunch hour that I can write. Thanks again.


  • #2
    I am sorry to hear of your loss and hope that your healing has begun. I am very happy that you had that special time with your father - it is a great gift.

    My thoughts are with you,
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)


    • #3
      Hi Ange. I'm sorry to hear your father passed away but it sounds like you had a good bit of time with him his last few days. I'm happy that he was ready to go because that makes it easier for you and other family. You're in my thoughts and prayers while the healing process continues.


      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.


      • #4

        Sorry to hear of your dad's passing . May you always remember those wonderfull memories of the last days you spent with your dad and may they give you peace whenever things get tough for you.

        Blessings to you,

        Dx @ 47 with HOCM & HF:11/00
        Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
        Lead failure,replaced 12/06.
        SF lead recall:07,extracted leads and new device 2012
        [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
        Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
        Genetic mutation 4/09, mother(d), brother, son, gene+
        Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


        • #5

          What a wonderful description of your father's last days. All of us who have lost a loved one would wish to have that kind of goodbye. Thanks so much for sharing and may your grief journey make you stronger and more courageous than you already are.


          God Squad co-moderator
          Nothing is as gentle as strength and nothing is as strong as gentleness