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Beverly Find out more about Beverly
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  • #16
    Beverly, Alaska is praying for you, your sister and the rest of your family. Please don't forget to take care of yourself. Keep us posted and may you always feel Gods Love.
    Donna B. HCM & ICD. 2 sons with HCM. Brother passed away from HCM at the age of 39. Mother has HCM.

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    • #17
      Beverly,

      My prayers are with you, your sister and your entire family. I hope you can find some peace.

      John
      41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005

      Comment


      • #18
        Please Pray

        Dear Beverly,
        You, your sister and your families are being held up in prayer here. May all of you sense God's presence and see His big plan and purpose for your lives.
        Deborah H.
        Daughter 12, Chinese adoptee, diagnosed April, 2005- ICD 2008

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        • #19
          Hey Guys,

          It looks as though the prayers are working. My sister is not out of the woods but is able to breathe on her own as of last evening. The infection came from the hospital the last time she was in for 2 weeks and having a central line put in. The docs are trying to find the right antibiotic to treat the infection and have been unsuccessful so far. I was able to say a few words to her and she was squeezing her daughters hand the whole time. Keep the prayers coming, we'll take them from anywhere anytime!

          Take care and God bless!
          Beverly

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          • #20
            I'm glad to hear she's improving. She'll continue to be in my thoughts and prayers.

            Reenie
            Reenie

            ****************
            Husband has HCM.
            3 kids - ages 23, 21, & 19. All presently clear of HCM.

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            • #21
              Well I just got off the phone with my siblings and the news isn't good. The transplant team came back and said they arn't approving my sister for transplant because her liver is now failing and they don't think she would survive. She is very critically ill and doesn't have long to live. Please pray for comfort for her and for her daughter. Most of all I pray that God has been burried into her soul. I so despretely want her to go to heaven so I can again be with her one day. I'm truely struggling with not going to VA but my family has asked me to stay and fight the HCM fight for both of us and win. Oh please God us this gift of life so my sister knows somehow we both win.

              Beverly

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              • #22
                I'm so sorry to hear that it isn't going very well now. You, your sister, and the whole rest of your family are most certainly in my prayers. I pray that she's found the Lord and is comforted that she will be with him soon.

                Reenie
                Reenie

                ****************
                Husband has HCM.
                3 kids - ages 23, 21, & 19. All presently clear of HCM.

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                • #23
                  We are praying that all goes according to God's plan. Our best to you and your family.

                  Angela

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                  • #24
                    Beverly,

                    Your sister is in my prayers.

                    Pam
                    Dx @ 47 with HOCM & HF:11/00
                    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                    Lead failure,replaced 12/06.
                    SF lead recall:07,extracted leads and new device 2012
                    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                    Genetic mutation 4/09, mother(d), brother, son, gene+
                    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                    Comment


                    • #25
                      I just spoke to Beverly - It is going to be a difficult few days for her family. We all need to show our love and support for Bev during this difficult time and help her stay strong so she is ready for the new heart when they call...which I pray will be very very soon!!!

                      Big hugs to Bev and family!!!!!!!!!!

                      Lisa
                      Knowledge is power ... Stay informed!
                      YOU can make a difference - all you have to do is try!

                      Dx age 12 current age 46 and counting!
                      lost: 5 family members to HCM (SCD, Stroke, CHF)
                      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                      Therapy - ICD (implanted 97, 01, 04 and 11, medication
                      Currently not obstructed
                      Complications - unnecessary pacemaker and stroke (unrelated to each other)

                      Comment


                      • #26
                        I know that God loves her and if it's her time she will go to heaven to be with him and you will see her again. God also knows how much you love each other and he will hold her, love her, give her strength and courage. She will feel the love and give herself to him, of that I am sure.

                        God bless you and your family. We are all praying for each person this is touching. Stay strong.

                        Joy
                        May I always be the kind of person
                        my dog thinks I am.

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                        • #27
                          Beverly

                          Please stay strong, God will make her his special Angel along with my brother and his daughter and know we here in Norfolk will be praying for your sister and your entire family and if you need anything please ask and know your HCM family is here for you God Bless

                          Shirley
                          Diagnosed 2003
                          Myectomy 2-23-2004
                          Husband: Ken
                          Son: John diagnosed 2004
                          Daughter: Janet (free of HCM)

                          Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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                          • #28
                            Beverly, my heartfelt prayers are with you and your family at this difficult time. I am sure God will receive your sister with outstretched arms. At this time please remember to take care of yourself as your sister would want you to. God Bless you all.
                            Midge

                            Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
                            ICD&Pacemaker 1996
                            Heart transplant March 19, 2004 @ Mayo Rochester
                            Mom of Kaye.

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                            • #29
                              Beverly,

                              Many people all over the world are praying for you and your family. Please rest in that.

                              Rhoda

                              Comment


                              • #30
                                Beverly,

                                Our thoughts are with you through these most difficult times. We pray for your sister and her family in the days to come.
                                And for a new heart to come soon for you.

                                Stuart & Barbara
                                Cleveland Myectomy Club
                                August 31, 2004

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