If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Love ya... sent to me by an HCMA member and shared with all

Collapse

About the Author

Collapse

Lisa Salberg Find out more about Lisa Salberg
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Love ya... sent to me by an HCMA member and shared with all

    "LOVE YA"

    Suppose one morning you never wake up, do all your friends know
    you love them? I was thinking...I could die today, tomorrow or next
    week, and I wondered if I had any wounds needing to be healed,
    friendships that needed rekindling or three words needing to be said.

    Let every one of your friends know you love them. Even if you think they
    don't love you back, you would be amazed at what those three little words
    and a smile can do. And just in case GOD calls me home ........ I
    LOVE YA!!! Send this to at least 4 people you love and send it back to
    the person who sent it to you .....Live today to the fullest because
    tomorrow is not promised.

    The Will of God will never take you to where the Grace of God will
    not protect you.
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    I have heard many people say after losing a loved one, "I wish I would have told her how much I loved her".

    For the short period of time that I have been a member of the HCMA, I have come to know many. When they are ailing, I feel so very bad and wish there was some way I could help them. To me, that is love in my heart for him/her. After the loss of Lisa Inman, so many of us felt the emptyness in our hearts. To me, that is another way of loving someone.
    Our community is very caring tightly bound together. When one hurts, the other does, too.

    I always tell my husband "I love you" before we go to sleep and my daughter before I hang up after speaking to her on the telephone. I hope they can feel the meaning in my words.
    Esther

    Comment


    • #3
      Those have been the hardest three words to say in my life.

      It took years to be able to say it. I didn't even realize it. I guess it was because the abusive life I had that I had forgoten how to love. I was not capable of trusting because it seemed like everytime I did I would get hurt. But, each time it seemed to be deeper and more painful until finally I shied away from everyone. But, my high school counselor never ever gave up on me. Till this day we are friends and I remember a conversation just a year ago when we were talking. I uttered those words to her, I hadn't noticed. She did, the line went silent and she asked me "do you know what you just said". "No, I said". She said in the seven years I had known you you have never said those words. I was speechless.

      I never realized how important those words were to somebody. But now I guess I've changed a bit and have learned to open my heart and feel that love doesn't have to hurt. I guess my biggest hurdle now is my parents well my mom. My dad died in Dec. and honestly (I know I shouldn't say this) don't miss him. But, my mom wants to get in contact with me. I don't know what I should do. They knew about my heart condition and never tried before. Why should I let her into my life because she doesn't have anyone now. I mean where was she all of those lonely miserable nights spent in ICU when the only people who bothered to care were my friends and Burt calling to cheer me up.

      Wow, I've gotten way to emotional. Think I"m gonna take a breather!

      mary S.

      Comment


      • #4
        Mary.

        Take a deep breath...you have healed a lot inside already to be able to make yourself this vulnerable to all of us.

        In all the years I worked with people who had so much pain in their lives, I saw one abiding characteristic. Courage. You remind me of the many people I was privileged to walk with. People who got knocked down again and again and yet would not be destroyed!

        Your strength and courage has brought you this far. Your strength and courage will empower you to do whatever you need to do with your mom. And we will all be here to support you.

        Peace,

        Leon
        God Squad co-moderator
        Nothing is as gentle as strength and nothing is as strong as gentleness

        Comment


        • #5
          Thanks Leon I needed that!

          Mary S.

          Comment

          Today's Birthdays

          Collapse

          There are no members with birthdays today.

          Working...
          X