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When God is not appropriate


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Toogoofy317 non-obstructed hcm, AICD 11-01-02 and 10-6-05 Find out more about Toogoofy317
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  • When God is not appropriate

    There have been many times that I've wanted to Yell at God for giving me this disease, turn my back on him for leaving me alone in a hospital bed on so many nights, or just beg for warmth and love of a father that I never got to have. But, I refuse to do this:
    " Please Remove This:God

    I wrote a post on the disability support forum. Felt it was more of a place to put my vents on my disability denile. they rejected it from the site and Would not post it so that my questions would be answered. because of the statement "God I hope so". Here is what they said:

    Please remove this:

    Policy on Religion, Politics and This Group: Religious beliefs are very personal and vary greatly. We have many members and in order to respect everyone’s differences we ask that you refrain from making religious references in your posts. Since this group is focused on Social Security Disability issues they are not appropriate here

    So, When is God appropriate? When life is all honkuy doorey and we have nothing to ask for. I am by no means a hugely religious person but when I am censored for just making a remark that I hope God will help me too. I think has gone a little too far. But yet they have religious charaties on their website that have that religious refrence word that I cannot say.

    Oh boy, I think I need to go to bed!

    Mary S.

  • #2
    God is welcomed here. There is a time and a place for everything, we at the HCMA understand that we need the support of God in dealing with our lives, that is why we created a part of the website just for this the GODSQUAD.

    Mary I really hope that you find the support you need and deserve - and yes, god please bless Mary and help her feel well!

    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)


    • #3

      Feel free to talk about God, question God, investigate God, etc. I am so thankful that Lisa saw this section of the board as an important way to offer support to all of us.

      There are a lot of us in this community with a lot of different beliefs about the Almighty. All we need to do is give each other space to express our hearts and stand in solidarity with each other. We don't have to agree.

      Mary. I too pray that God will grant you peace and physical relief.

      God Squad co-moderator
      Nothing is as gentle as strength and nothing is as strong as gentleness


      • #4

        How disheartening. I don't believe in a single human-like "God" yet I do send my deeply felt prayers to and for you--I do believe in their power.

        I don't agree with your post being censored for using the word God, although if it is any consolation (VERY small) I bet it was an automatic program that identified the word in your post and automatically spit it out and returned it....

        Best prayers and thoughts for you, Lisa Inman


        • #5
          Mary, I will keep you in my prayers. I think of you often.

          Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
          ICD&Pacemaker 1996
          Heart transplant March 19, 2004 @ Mayo Rochester
          Mom of Kaye.


          • #6
            This might sound weird but I think this happened for a reason. I almost believe it was a way for God or whatever entitiy to get my full attention.

            I got a phone call today from Dr. M.Maron. We talked for a bit about my recent bouts of hospitalizations and the decline of my quality of life. "He said at this point we have exhausted all medication possibilities and the only thing left now was heart transplant."

            I guess now more than ever I need God. I need him for strength for I am week, I need him for wisdom for I know not what lies ahead of me, and I need him for hope that one day I again will have a life where I am not limited where I can accomplish the dreams I had and make my mark on the world.

            I guess I needed the phrase "Please Remove God" to remind me not to turn my back even when the days are lonely and painful. Many people have asked me how I've been so strong through all that I've endured I think I now may know the answer. Because I believed in one thought that God has me here for a purpose. There has to be a reason why I have had to go through all of these trials. I guess I can just sum it up in four words. "God has a reason".

            Thanks for listening as always,

            Mary S


            • #7
              I've always thought things happen for a reason.


              Husband has HCM.
              3 kids - ages 23, 21, & 19. All presently clear of HCM.


              • #8
                I too believe there is a reason for everything and i also believe God will not give us more then we can handle, sometimes we have rough times to apreciate the good times Hang in there Mary

                Diagnosed 2003
                Myectomy 2-23-2004
                Husband: Ken
                Son: John diagnosed 2004
                Daughter: Janet (free of HCM)

                Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


                • #9
                  I hope the fact that lots of folks will be praying for you and pulling for you will be some comfort during this very difficult and scary time. And you've got to believe- I do- that there is some purpose for all we encounter and deal with in life. Be strong and positive. There will be brighter days ahead.
                  Diagnosed 8/2002, Myectomy (CCF) 3/2003, ICDs 2003,2006 (fired once appropriately), FT researcher, wife and mom of 2 boys (17 and 20).