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Reenie Find out more about Reenie
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  • Thoughts and prayers requested for my family.

    I haven't said a lot about my family, but I'd really appreciate all the thoughts and prayers you guys can spare. My mom had lymphoma about 3 years ago and she fought it. She was completely cancer free until about 2 months ago. It has come back in a different spot than before. This is extrememly unusual with the type of lymphoma that she has. They have her on a new drug and have taken a bone marrow sample to see if it's originating there. My sister's and my gut feeling is that it IS in the marrow. We're awaiting test results next week.

    In the meantime they can't find any more cancer with the tests they currently have, but she's dropping weight and doesn't look very good. She's only 58. They have talked about giving her some intensive chemo to kill the marrow then do a marrow transplant. My sister worries that this treatment will kill her faster than the cancer will.

    I'm 1000 miles away and Mom tries to spare me from worry, so I have to piece together the information as I can get it from various family members. Please keep us in your prayers. There is so much to worry about right now and it's hard for me to enjoy Christmas this year. Thank you all.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

  • #2
    My prayers are for peace this holiday season now and always for you and your family. May God grant your Mother healing strength to continue her battle with the cancer that she has overcome once and now a new battle rages for her. Victory will be hers!

    Love and Light,
    Sharon

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    • #3
      Reenie,
      I really feel for you – your sister, and all the families – but most of all for your mom. My dad died in January 1949 of colon cancer that metastasized all over, after a three year battle, losing ground only grudgingly little by little.

      I have often wondered if they had the tools and knowledge they have today back then if he would have beat it. I suspect he would have. Of course if he did beat it and was alive today he would be coming up on his 104th birthday. I guess my son and I would now both have to help him chase women, and even I have already forgotten why we do that.

      Reenie, if I can make a suggestion, instead of making yourself sick over this, concentrate on all the wonderful things you have done together, and the great mom she has been over the years. If it is G-d’s will that she beat this – well then she will. If it is His will that he wants her back, then she will go home again. A journey we all must make some day.

      The best we can do is to try and influence Him in the event he has not made a final decision yet, and prey that he make her passing, whenever that may be, a gentle one. That’s what I prey for me and mine, and that’s what I prey for her. I will also prey that He cogitates on it for years and years. Don’t forget, for Him, time is forever.
      Burt

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      • #4
        Reenie, I wish all the best for you and your family in the New Year.
        Lets hope you report same time next year that things are so much better.
        Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
        So if you are capable of thought then you are capable of great things
        Good luck and stay well.
        Glen

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        • #5
          Reenie,

          You have been here for so many of us during our hard times. I'm sure your mother is very proud to have raised a compassionate daughter. I still remember the coloring book you sent me when I was sick. It was a sign that people did care and were looking out for me. I will never forget it.

          I hope your mom pulls through successfully and you have a peaceful holiday.

          Mary S.

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          • #6
            May God grant you and your family peace and mercy.
            Leon
            God Squad co-moderator
            Nothing is as gentle as strength and nothing is as strong as gentleness

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            • #7
              Prayers to you and your family are being said here in NJ. For all of the good you do for others I pray that your family will be blessed with good health very soon.

              Peace to you and yours,
              Lisa
              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)

              Comment


              • #8
                Dear Reenie,

                I am praying for you. I hope you will be able to concentrate on the joys of Christmas at this difficult time.
                Rhoda

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                • #9
                  Reenie, I'm praying for you and your family. Linda

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                  • #10
                    Reenie,

                    my heart , thoughts and prayers go out to you , your mom and your family. May this holiday keep you all close and find that the news you are waiting for comes through as positive and that your mom will be able to feel bettervery soon.

                    Pam.
                    Dx @ 47 with HOCM & HF:11/00
                    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                    Lead failure,replaced 12/06.
                    SF lead recall:07,extracted leads and new device 2012
                    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                    Genetic mutation 4/09, mother(d), brother, son, gene+
                    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                    Comment


                    • #11
                      Reenie, I am saying prayers for your mom and your family. I hope you can find a little holiday cheer (I don't have much myself!) and put your trust in God (so hard sometimes!). God bless, Kathy

                      Comment


                      • #12
                        Reenie,

                        It's hard to enjoy Christmas when you have so much going on in your life.
                        I'm sorry that you are going through this right now.

                        I hope that you'll find out good results from the bone marrow tests. I will keep you in my thoughts and prayers, (and your Mom and family).

                        God bless you all.

                        Debbie

                        Comment


                        • #13
                          Reenie,

                          I hope you know that you and your family are always in my thoughts and prayers. This is such a challenging time for all of you and I can only imagine that the holidays make it more difficult. Know that Tim and I are sending warm thoughts to each of you.

                          Peace to each of you,
                          Lynn
                          Lynn Stewart
                          HOCM 4/2002
                          Cleveland Myectomy Crew 8/2002

                          Comment


                          • #14
                            A quick update, Mama called me last night and said that her bone marrow is clean! What a great Christmas present! Now they have to decide whether or not to try the chemo/transplant approach or not. She still meets with the experts next week and I'm not sure when she'll make her decision, but we're a step closer. Hugs to you all.

                            Reenie
                            Reenie

                            ****************
                            Husband has HCM.
                            3 kids - ages 23, 21, & 19. All presently clear of HCM.

                            Comment


                            • #15
                              And hugs to you and Mom also - We'll keep praying and hoping for the best. Linda

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