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Lisa Salberg Find out more about Lisa Salberg
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  • Prayer for a friend / member

    Hi everyone,
    Those of you who have been around for a while may remember Marleen who worked in the HCMA office. Her daughter Ali - AKA ALIBEAR here on the board, is not feeling very well. I heard from them this morning and Ali has been very sick for 2 months and was added to the transplant list this week.
    I want to send all of our love and support the the entire family and our best wishes that a heart is found soon so that Ali can get back out and about!

    WE LOVE YOU ALI!!!

    Sincerely,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Re: Prayer for a friend / member

    Best of luck, Ali. I hope all goes well for you.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Re: Prayer for a friend / member

      My thoughts and prayers, ALIE . Hope all goes well for you and soon.
      Pam
      Dx @ 47 with HOCM & HF:11/00
      Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
      Lead failure,replaced 12/06.
      SF lead recall:07,extracted leads and new device 2012
      [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
      Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
      Genetic mutation 4/09, mother(d), brother, son, gene+
      Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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      • #4
        Re: Prayer for a friend / member

        Ali

        Thoughts and prayer are coming your way

        Shirley
        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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        • #5
          Re: Prayer for a friend / member

          Ali.
          Be assured of prayer and best wishes.
          Peace,
          Leon
          God Squad co-moderator
          Nothing is as gentle as strength and nothing is as strong as gentleness

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          • #6
            Re: Prayer for a friend / member

            Ali and family,

            We are praying here in Beijing.

            Rhoda

            Comment


            • #7
              Re: Prayer for a friend / member

              Ali and Marlene, You and your entire family are in our prayers. Marlene, my number hasn't changed - Thinking of you, Linda

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              • #8
                Re: Prayer for a friend / member

                Dear Ali,
                My hopes and prayers to you for a new heart and well wishes on a speedy recovery. God and his angels will be with you the whole way through. May your family find peace and joy in all these days ahead.

                Love and Light,
                Sharon

                Comment


                • #9
                  Re: Prayer for a friend / member

                  Ali and Family,

                  Sending up prayers and holding positive thoughts. I pray that all is well for Ali very soon. God bless you all.


                  (((((((((Ali)))))))))))


                  Eileen
                  49 yrs. old
                  Diagnosed at 31.
                  Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
                  First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
                  Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
                  Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
                  My brother passed away suddenly at 34 yrs old from HCM.
                  2 teenage children, ages 17 and 15.

                  Comment

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