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Let her rest in peace

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  • shirleymahoney
    replied
    Re: Let her rest in peace

    Cally

    Welcome to the board, as Lisa says the board you never wanted to join

    We are all here for each other, I know how you feel losing family to this disease as i have lost several also, if there is anything you need to know post it someone will come back to you

    Shirley

    Leave a comment:


  • Pam Alexson
    replied
    Re: Let her rest in peace

    Cally,
    Welcome to the board and thank you for sharing your story. There are many in need of support and validation as they have similar yet different and unique stories as well. We can all feel helped here and find comfort in knowing we don't walk alone. It is very tough indeed to lose our friends and loved ones to this disease. I am sorry for your losses.
    I look forward to hearing more from you.
    Pam

    Leave a comment:


  • Largehearted
    replied
    Re: Let her rest in peace

    Dear Cally,

    Glad to hear from you here. You are right about HCMA members. I have rarely found so many people who are interested in each other and look for ways to be supportive. Welcome aboard.

    Peace,

    Leon

    Leave a comment:


  • Lisa Salberg
    replied
    Re: Let her rest in peace

    cally-
    Thank you for your posting. I can see you have been through a great deal and my heart goes out to your for all you have lost.
    Take care of yourself and I hope to hear more from you here on the board.
    Lisa

    Leave a comment:


  • cally533
    replied
    Re: Let her rest in peace

    I'm newly registered to the board, but have been reading it for a while. I lost my father when I was 2 years old (i'm 23 now) to HCM, and lost my 17 year old sister 5 short years ago. It was only then that I was tested and diagnosed with HCM as well. Getting checked out is just a matter of getting a few simple tests done by a cardiologist. You should also make sure your sister gets tested as well (if she hasn't already.)

    Just wanted to say that i'm truly sorry for the loss of your mother, and very glad that you have the presence of mind to get yourself checked out, and to come here to talk to other people about your situation. As for eating and sleeping, they'll both be tough for a while. Then one day you'll realize how hungry you are, and how good a nap after lunch sounds. I can't say that it gets easier, or that you'll get over it.....but you will learn to adapt and keep on truckin'. Talking to the people on this board will help with that. I wish I had found it 5 years ago. Good luck Cullen, and keep us informed.

    Leave a comment:


  • Pam Alexson
    replied
    Re: Let her rest in peace

    Cullen, I am sorry about your tremendous loss . Losing a mom is got to be one of the hardest things that can happen to someone. I am glad that you posted here and that your sister encouraged you to do so . Hold on tight to each other during this rough time and know that we are all thinking about you and your sister and that we are here anytime you need to check in.
    Bless you , Pam

    Leave a comment:


  • Linda
    replied
    Re: Let her rest in peace

    Cullen, you and your family have been in my thoughts and prayers. Please keep us posted as to how things are going. I hope getting back to school helps you. You will be around many more people who care about you and want to help. Take care, Linda

    Leave a comment:


  • bpguy2000
    replied
    Re: Let her rest in peace

    thanks for your help at this time,ttyl.

    Leave a comment:


  • mtlieb
    replied
    Re: Let her rest in peace

    Cullen,

    I am so sorry to hear about your mom. Everyone here has been thinking of you and your family since your sister posted the news to us. Your mom would want you to take care of yourself, so please try to eat what you can and stay strong for her, okay?

    Jim

    Leave a comment:


  • Lisa Salberg
    replied
    Re: Let her rest in peace

    Cullen,

    Welcome to the HCMA. I will make a few suggestions regarding getting some "support". You have been though a great loss, you are also still very young and we all know it is "unfair" that you have had to endure this loss. You will have to give yourself time to cope with your loss and let yourself be in a pain, grieve, be angry, accept what has happen and then take the hardest step of all - take all of these feelings and let them make you a stronger person and continue to live your life with ALL of the lessons your mother has taught you. Let people help you - at home and at school - sometimes it may seem that they have no idea what they are talking about or how you feel - but LISTEN to them they will each give you little clues as to how you can feel better - remember NO ONE has THE answer - it is a process not a word. Your mom will be with you every minute of every day for the rest of your life. She loves you and will watch over you and help you find the right path.

    Let your mind and body rest - try to eat well, even if you are not hungry try to eat health food - believe it or not it will help you feel better sooner. Let yourself cry - or not which ever you wish. Talk to your family about your mom - dont be afraid to talk about her - dont be afraid to talk to her.

    Many of us here have lost people we love dearly - we know it is a hard road - but you need to know you are not alone and there will be a time when you will be happy again. Dont be afraid to laugh and smile and have a good time - your mom would want to see you happy.

    Your aunt knows were to go for medical help -talk to her and talk to your dad. They will take good care of you.

    We are always here for you. Stay strong and know you and your family are in my thoughts and prayers.

    Take care of yourself,
    Lisa

    Leave a comment:


  • shirleymahoney
    replied
    Re: Let her rest in peace

    Cullen

    I know how you feel i lost my mom years ago, i was a young woman, but it is hard at any age, just know your mom is watching over you and your family, just because you can't see her does mean she isn't there and she is also in your heart, I hope you this helps a bit.

    I have lost a brother to this disease and his daughter also just 6 months ago for my neice, so please have your dad call Lisa her number is at the bottom of this page and she should be in the office today, you take care and if you need anything please feel free to write to us or private message one of us and know you are not alone

    Shirley

    Leave a comment:


  • Nancy C
    replied
    Re: Let her rest in peace

    Cullen,
    I'm so sorry that you've lost your mother. I'm glad your sister suggested you join this board and how brave you are for posting. Eating and sleeping will be something you do in a while. Don't push yourself; just acknowledge how you feel. I'm sure you are lost and scared but know that you are not alone. Please keep us posted as to how you are feeling.
    Nancy

    Leave a comment:


  • Sarah
    replied
    Re: Let her rest in peace

    Hi

    I lost my dad a few years ago, so I know a bit about how you are feeling.

    It is normal to not be able to eat or sleep for a while right after you lose someone that close to you, but please remember that your mom would want you to eat. I find that soup always goes down even if I think I can't eat anything.

    There is a whole section of this web site for people under 18 called The Hang Out--you should post there, too.

    To get checked out, please see your regular doctor and ask to be sent to a cardiologist for an echocardiogram. The echo is a painless test --it is the same test they do to look at babies before they are born, but they look at your heart-- and it will show the doctors your heart walls, to see if they are too thick or not.

    I wish I could give you a big hug. People will say all kinds of things about how you or should not feel or what your mom would or would not want (see, I did it too!) but the most important thing is to be true to yourself and feel whatever you feel when you feel it. Don't hide from your emotions or ignore them becuase they are painful; they will just come back worse later. This may not make any sense right now, but just trust me on that one.

    You will be angry with your mom---that's normal and ok. You may not be angry now, maybe not for a long time, but it will probably happen. Don't worry about it --just be angry for a while and it will stop. But you can't stop being angry if you never let yourself get angry in first place.

    The PM button at the bottom of posts allows you to send a private message to that person. Feel free to use it if you want to share anything you don't want to post in public.

    take care,

    Sarah

    Leave a comment:


  • jujemendoza2002
    replied
    Re: Let her rest in peace

    Cullon, I'm so sorry for the loss of your mother! You have my deepest sympathy! I am glad you found your way here, this is a great place, you should be able to find TONS OF SUPPORT here and TONS OF GOOD INFORMATION and GOOD FRIENDS. Ilost my only son 9/29/00 not long after his 6th birthday due to SD, hcm. SO if you ever need someone to talk to, I'm here too. I wish you well, talk to Lisa she can help get you pointed in the right direction!

    Leave a comment:


  • Debbie
    replied
    Re: Let her rest in peace

    Cullen,

    I am so glad that you took your sister's advice and came to visit this site. There are many people here who care about you and what you and your sister have gone through.

    It is so hard to lose your Mom, (I just lost my Mom to HCM 2 1/2 years ago, it was hard for me, and I'm now 40). To lose your Mom at such a young age is really a tough thing. I wish I could make it better for you and take the hurt away. I know that nobody can do that.

    But feel free to visit this site, talk about your feelings, ask questions, and learn about HCM. Like I said, there are so many people out there who are ready to talk to you, and we all want to be there for you and your sister.

    I will be watching for you on the HCMA.

    God Bless you, my young friend. Take care.

    Debbie

    P.S.

    Remember, there are no stupid questions.

    Also check out the "Hang Out". It is a forum for young people to talk to each other. Don't be afraid to try it out. It is relatively new, so even if if doesn't seem to have a lot of posts yet, you can still find young people like yourself to talk to.

    Leave a comment:

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