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Let her rest in peace


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  • #16
    Re: Let her rest in peace

    I'm newly registered to the board, but have been reading it for a while. I lost my father when I was 2 years old (i'm 23 now) to HCM, and lost my 17 year old sister 5 short years ago. It was only then that I was tested and diagnosed with HCM as well. Getting checked out is just a matter of getting a few simple tests done by a cardiologist. You should also make sure your sister gets tested as well (if she hasn't already.)

    Just wanted to say that i'm truly sorry for the loss of your mother, and very glad that you have the presence of mind to get yourself checked out, and to come here to talk to other people about your situation. As for eating and sleeping, they'll both be tough for a while. Then one day you'll realize how hungry you are, and how good a nap after lunch sounds. I can't say that it gets easier, or that you'll get over it.....but you will learn to adapt and keep on truckin'. Talking to the people on this board will help with that. I wish I had found it 5 years ago. Good luck Cullen, and keep us informed.


    • #17
      Re: Let her rest in peace

      Thank you for your posting. I can see you have been through a great deal and my heart goes out to your for all you have lost.
      Take care of yourself and I hope to hear more from you here on the board.
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


      • #18
        Re: Let her rest in peace

        Dear Cally,

        Glad to hear from you here. You are right about HCMA members. I have rarely found so many people who are interested in each other and look for ways to be supportive. Welcome aboard.


        God Squad co-moderator
        Nothing is as gentle as strength and nothing is as strong as gentleness


        • #19
          Re: Let her rest in peace

          Welcome to the board and thank you for sharing your story. There are many in need of support and validation as they have similar yet different and unique stories as well. We can all feel helped here and find comfort in knowing we don't walk alone. It is very tough indeed to lose our friends and loved ones to this disease. I am sorry for your losses.
          I look forward to hearing more from you.
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


          • #20
            Re: Let her rest in peace


            Welcome to the board, as Lisa says the board you never wanted to join

            We are all here for each other, I know how you feel losing family to this disease as i have lost several also, if there is anything you need to know post it someone will come back to you

            Diagnosed 2003
            Myectomy 2-23-2004
            Husband: Ken
            Son: John diagnosed 2004
            Daughter: Janet (free of HCM)

            Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


            Today's Birthdays