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General call...


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Lisa Salberg Find out more about Lisa Salberg
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  • General call...

    I just wanted to let you all know that each of you are in my thoughts and prayers everyday - as are the thousands of people living with undiagnosed HCM.

    I know many of you keep the same thoughts close to your "big" hearts everyday - but I figured I would say it!

    Peace to you all,
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Re: General call...

    God bless you, Lisa!



    • #3
      Re: General call...

      Thank You, Lisa.

      " Real Courage Is Being Scared To Death But Saddling-Up Anyway "


      • #4
        Re: General call...

        You're right! You have put into words what we feel in our hearts. It is sometimes hard to put feelings into words, you seem to have no problem. Thank you for speaking on behalf of us.
        BTW....you are included in my prayers, too.
        Hugs to you


        • #5
          Re: General call...

          Thank you Lisa.
          God Squad co-moderator
          Nothing is as gentle as strength and nothing is as strong as gentleness


          • #6
            Re: General call...

            Yes Thank You Lisa and God Bless

            Diagnosed 2003
            Myectomy 2-23-2004
            Husband: Ken
            Son: John diagnosed 2004
            Daughter: Janet (free of HCM)

            Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


            • #7
              Re: General call...

              Thank you, Lisa and God bless you and all of you who have shared their knowledge and provided support in the short time I have been part of this forum. Peace and God bless you all.



              • #8
                Re: General call...

                Thanks Lisa! You're so thoughtful.


                • #9
                  Re: General call...

                  Dear Lisa,

                  Thanks for all you do for us every day. We know we're never far from your thoughts.


                  Husband has HCM.
                  3 kids - ages 23, 21, & 19. All presently clear of HCM.


                  • #10
                    Re: General call...

                    This is my first post and I may not do it right. But, I am thankful to God for Lisa and her staff who give of themselves unstintingly. As I get to know people here and if God brings you across my mind, I will pray for you. Not an elaborate prayer, but just to remind the creator of your needs for healing and daily living.
                    Blessings to Lisa and to all who have found hope and strength here.
                    HOCM diagnosed Mayo Clinic Aug. 2010

                    25 mg of atenolol.


                    • #11
                      Re: General call...

                      Your first post is just fine. Meggy, like you, none of us asked to have HCM and many of us had never heard of HCM until we were diagnosed with it. You are correct, we all are very thankful for Lisa and her vision to start this association.

                      Welcome to our message board. Why don't you create your second post and start a thread under "Hello, my name is......." and introduce youself.
                      Onward and Upward !

                      Diagnosed 4/07 HCM with fixed & dynamic obstruction
                      Myectomy with resected cordonae tendonae 4/08 CCF
                      ICD 10/08


                      • #12
                        Re: General call...

                        As a priesthood holder in my faith as a member of , " The Church of Jesus Christ of Latter Day Saints", I get encouragement. I know that our heavenly father wants what is best for us, I also know that many of us are being tested in more ways than one. And it's that stead fastness as brother and sisters that we need to remain faithful.