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Thank God for HCMA

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  • #1

    Thank God for HCMA

    Wow I found out about my HCM recently and have been floundering trying to figure out what to do. It is alot to deal with. I am so glad I found this site!! At least now I know I am not alone.

    Lisa, I talked with you for the first time just a couple of days ago and you have already helped me so much. If I cant control the problem at least I can take control of my health care. Thank you SOOO much for the help!!
    2.6 Septal Measurement
    ICD Aug 2010 (pushed into it over 6 abnormal beats...hate it!!!)
    "I would rather have thirty minutes of wonderful than a lifetime of nothing special"
    ~Steel Magnolia's~
    Tags: None
  • #2
    Re: Thank God for HCMA

    Gayle, I'm not Lisa, but I wanted to let you know that the feeling you have now, the empowerment, is exactly what we're after here. We want to help get rid of fears of the unknown and help people understand what is going on in their bodies so that they can take some control of their lives. Hope you have a great weekend.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Re: Thank God for HCMA

      Thank you... your comments are very appreciated.

      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #4
        Re: Thank God for HCMA

        Welcome Gayle a fellow southener!
        I see that you're from South Carolina, but since you've spoke to Lisa already I guess you're not heading to Charleston.
        I live outside Atlanta. The lack of HCM specialists in the south is quite frustrating, although Lisa posted that a Mayo person moved to Jacksonville and that there was somebody good in the Raleigh Durham area.
        All the best to you and your family. Let us know if any of us can help.
        Fx

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        • #5
          Re: Thank God for HCMA

          Correction... Dr. Asher - from Cleveland has moved to the Cleveland Clinic near Ft. Lauderdale - I had said Jacksonville - my mistake...sorry
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment

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