If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

God created the Florida Keys for those with HCM

Collapse

About the Author

Collapse
Lisa Salberg
Lisa Salberg
Lisa Salberg
HCMA CEO and Founder
Find all posts
View Profile
Find out more about Lisa Salberg
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    God created the Florida Keys for those with HCM

    Really...think about it...it is flat, it is warm, yet the breeze keeps it cool enough not to bother you, it is laid back, low stress and they really do not mind when you walk slow and best yet.... everyone has a bottle of water in their hands at all times (OK I think many had vodka too but that a different story!)
    I think that the Florida Keys should be home to all those with HCM simply for medical reasons and those there now are just going to have to move north

    Thank God for the Florida Keys!

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)
    Tags: None
  • #2
    I'll drink to that...water that is!! I say we do an annual meeting some year in March in the Keys!

    Lynn
    Lynn Stewart
    HOCM 4/2002
    Cleveland Myectomy Crew 8/2002

    Comment

    • #3
      I have a better idea...meeting mean work...lets just all go to FLA to PLAY!
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment

      • #4
        I recommend the next HCMA meeting should be held in the later part of October in Key West. Talk about getting some heart rates up!!

        For those who have not been to Key West. They have Fantasyfest every year as part of a Holloween celebration. And let's just say that some of the "costumes" get rather creative. Some "costumes" are nothing more than body paint.

        Comment

        • #5
          The keys are a great place along with great fishing.

          Howie

          Comment

          • #6
            OH yeah! Three more days till my vacation to the KEYS!

            Although, I live in Florida it is so much different than the central part where I live!

            People always ask me where do people go who work for Disney go on vacation

            Here's your answer!

            Mary S.

            Comment

            • #7
              Have a blast!!
              I can highly recommend a few restuants:
              Mile marker 100-ish Sundowners (at sunset)
              Mile marker 89 ish - Snappers - again a good night time spot...
              Mile marker 40 ish - Mombo Mamas - great lunch spot
              KEY WEST stay away from Crabby Billies - several people I know got very sick there.
              Key West - Hogs Breath is always fun - Billy's is nice and around the corner is a nice Cuban place very good food and a great deal of history too.
              Stop by KINOS for the best $8.00 handmade sandels you have every seen, I still have a pair from 1979 that have held up all these years!!
              They are 1 block off of Duval in a little side area - aske anyone where it is you will find it.
              For more Keys information...Mom and Dad can chime in!

              Lisa
              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)

              Comment

              Previous template Next

              Today's Birthdays

              Collapse
              Working...
              X