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Interesting association...

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Bomer I am 27 years old. I was diagnosed with HCM-IHSS when I was born, then within a few days, doctors told my parents I "out grew" it. Around the age of 12 or 13 I was diagnosed with exercise induced asthma, yet to this day, hardly any of the "maintenance" inhalers work. At the age of 14 or 15 I was diagnosed with a heart murmur. Which recently showed up again in a physical. The dr both back then and now sent me for an Echo. The first time I was just mortified but the second time, I kind of knew the procedure so I just went with it. Most recently because of the Echo, I have been diagnosed with Mitral Valve Prolapse. I still have many symptoms even though I am on multiple daily medications. I just went to a cardiologist 2 weeks ago and he sent me for another Echo, even though my last one was only 6 months prior. I will be getting the results next week. I never mentioned the diagnosis of HCM as a baby to this cardiologist. In some ways I hope that I get the diagnosis, because then I can be properly treated. Find out more about Bomer
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  • Interesting association...

    I haven't been diagnosed with HCM yet... wait, I take that back... I was diagnosed as soon as I was born, but within days "out grew" it... long story... so... I been doing research on HCM recently because I have been having many complications and I figure if I can see what the deal is with this then maybe I can learn to cope better... in my research I have been reading a lot about how there is no cure etc... Now a little background with myself, I am an addict, I attend NA meetings regularly, and honestly, the meetings are also helping me cope with this possible diagnosis on Monday... With addiction, the book says, it is a disease with no known cure but it can however be arrested... which, basically is the same thing with HCM... So, I go into meetings now introduce myself and state that I have multiple diseases to which there is no known cure, but can however be arrested if I choose to do the work... I believe the addiction didn't help the HCM (if I have HCM) and I also believe the possibility of HCM didn't help the addiction... but I take both very serious right now... and I believe its God's plan for me today... whatever God you believe in, or I believe in, just like in NA doesn't matter as long as you believe in a Higher Power...

  • #2
    Re: Interesting association...

    Well said Bomer !!
    Onward and Upward !

    Diagnosed 4/07 HCM with fixed & dynamic obstruction
    Myectomy with resected cordonae tendonae 4/08 CCF
    ICD 10/08

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    • #3
      Re: Interesting association...

      Agreed! Well said! And congrats on conquering you addiction!


      Beejay

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      • #4
        Re: Interesting association...

        Thanks... I have learned mostly through NA that a support group is ALWAYS beneficial.. no matter if it's addiction, or heart problem, it can be a scary thing to deal with alone, so you need someone who can relate, share their experience, strength and hope, and know that someone is always there to help you work through the feelings associated with it all...

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