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Death due to HCM

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Largehearted I miss living in Europe, specifically Munich, GermanyI like to think out loud. Some of my ruminations can be found at beinganddoing.wordpress.com. I love to cook and eat, but hate to clean up. I tend to be confident in my opinions, but will change when presented with a compelling enough reason/argument. Find out more about Largehearted
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  • #1

    Death due to HCM

    I received word this afternoon that a cousin -among the first in our extended clan to be diagnosed with HCM- passed away. He had heart failure in the end. And while he had many issues resulting from HCM over the years, he did live to experience his many grand children and reached into his seventies.

    Peace to his family and to all who have experienced loss.

    Leon
    God Squad co-moderator
    Nothing is as gentle as strength and nothing is as strong as gentleness
    Tags: None
  • #2
    Re: Death due to HCM

    Leon,
    I'm sorry for your loss, but glad that he made it to his seventies - an age that doesn't seem so old any longer.

    Gordon
    Myectomy on Feb. 5, 2007.

    Comment

    • #3
      Re: Death due to HCM

      Condolences from ours to yours.
      Marc
      Diagnosed @ 48
      Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
      Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
      AICD - Valentines Day '08, Spark Plug replaced 11/14
      After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
      Quietly going insane . . .

      Comment

      • #4
        Re: Death due to HCM

        Leon,
        Sorry to hear of your loss. Sounds like he was on top of his HCM, but sometimes the good Lord has different plans for us. My condolances to you.

        John F.
        had HCM since birth
        'enlarged heart' identified in 96'
        HOCM dx in 7/08
        Myectomy 8/09
        extended Myectomy 5/10
        'End stage' HCM dx 8/10
        CRT-D implanted 9/10
        evaluated for Transplant 11/10
        Listed for transplant 6/11

        Comment

        • #5
          Re: Death due to HCM

          Leon,
          Like the others, I send my condolences to you and your extended family.
          Linda
          Onward and Upward !

          Diagnosed 4/07 HCM with fixed & dynamic obstruction
          Myectomy with resected cordonae tendonae 4/08 CCF
          ICD 10/08

          Comment

          • #6
            Re: Death due to HCM

            Condolences to you all.
            Dx @ 47 with HOCM & HF:11/00
            Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
            Lead failure,replaced 12/06.
            SF lead recall:07,extracted leads and new device 2012
            [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
            Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
            Genetic mutation 4/09, mother(d), brother, son, gene+
            Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

            Comment

            • #7
              Re: Death due to HCM

              Leon - Thinking of you and your family - Linda

              Comment

              • #8
                Re: Death due to HCM

                Leon,
                I am sorry to hear of your loss. Hopefully your cousin's diagnosis pointed the way for many family members to be tested and get proper care, and that can be a positive legacy.

                Susan
                Susan
                Diagnosed at age 53 in April 2010 (after having been
                "cleared" several times)
                Into running & cycling - cleared to continue at mild to
                moderate level
                Extensive family history
                Lost my mom, aunt and nephew to SCD
                St. Judes "Fortify VR" ICD implanted 8/30/2010 "Ces't Watt"

                Comment

                • #9
                  Re: Death due to HCM

                  Leon - My condolences to you and your family.

                  Tom
                  May 1993 - Diagnosed Apical HCM
                  Nov 2010 - ICD

                  Comment

                  • #10
                    Re: Death due to HCM

                    Peace to you and your family, Leon.
                    Theresa
                    Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.

                    Comment

                    • #11
                      Re: Death due to HCM

                      Sorry to hear of the loss Leon.
                      Joe Del

                      Diagnosed @ age 45 with HCM June 2004; ICD Implant: September 2004. Fifteen years prior was tested and told had an anxiety attack. Second ICD implanted May 5, 2009 with adding second lead.

                      My biggest part is the depression and now on disability.

                      Tested positive for HCM gene and all three children are negative.

                      Husband and father of three children: Son 18 and two daughters 13 and 7.

                      Comment

                      • #12
                        Re: Death due to HCM

                        Thanks everyone! Greatly appreciated.

                        Leon
                        God Squad co-moderator
                        Nothing is as gentle as strength and nothing is as strong as gentleness

                        Comment

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