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Mellie137 Diagnosed 2009. Left asymmetric septal myopathy. No surgery, no device. COE University of Texas Health Science Center at San Antonio. Find out more about Mellie137
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  • HCM Diet

    I was fascinated by a story of a Dr. Wahls, who was diagnosed with MS and reversed her symptoms with a modified Paleo diet. She went from being in a reclined wheelchair to long cycle rides. I'm a nutrition junkie, so I bought the book, though I don't have MS. (The Wahls Protocol) Interestingly, she believes that the diet may improve other inflammation related conditions. A friend with psoriatic arthritis controls her symptoms in part by following this diet. This made me wonder: Might the progression of HCM be inflammation related? I have lots of "-itises"--psoriasis, arthritis, irritable bowel, lactose intolerant, headaches. Has anyone found improvement in your symptoms by following a "healthy" diet, or increase in symptoms related to a day of dietary excess?

  • #2
    Re: HCM Diet

    Hi Mellie,
    I don't think there's any evidence that HCM is inflammation-related. But a lot of HCM patients do notice that their symptoms are worse under some conditions, such as after eating large, carb-heavy meals. Not everyone has this issue, but it's common.

    You should touch base with your HCM specialist before making any large changes to your diet.

    Gordon
    Myectomy on Feb. 5, 2007.

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    • #3
      Re: HCM Diet

      Hi Mellie,
      I don't think there's any evidence that HCM is inflammation-related. But a lot of HCM patients do notice that their symptoms are worse under some conditions, such as after eating large, carb-heavy meals. Not everyone has this issue, but it's common.

      You should touch base with your HCM specialist before making any large changes to your diet.

      Gordon
      Myectomy on Feb. 5, 2007.

      Comment


      • #4
        Re: HCM Diet

        Well, I let me tell you about my experience... 2 years ago I was with a gastric issues, as result, I decided to follow a diet of vegetable such as potatoes and some fruit... those days were the best days with HCM in my life, but I never was completely sure if the fact that I was not working those days helped. The thing is that I tried again, I feel much better when I follow a diet, but it's difficult for me follow it for a long time, because I am very thin, and when I follow a diet I almost disappear.

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        • #5
          Re: HCM Diet

          I have no medical training, but I have read every article about HCM in the medical journals that I could find. I think I have understood some of what I have read. I don't like self-appointed experts, but here is my opinion for what it is worth. HCM is a genetic disease. It is caused by either inherited or mutated genes. There has been no credible evidence shown for any other cause. But that is not the end of the story. Some genetic configurations are clearly deadlier than others. The symptoms of HCM vary greatly from person to person. Some of those variations are determined genetically, but I suspect that many of them are caused by other diseases that a person might have, lifestyle, diet, and many other things. Some of those things we can influence, other things we can't. HCM is in our genes and we can't change our genes. Ever. We had HCM when we were born and we will have it when we die. In the long gap in the middle, we may be able to make our lives better by taking the right care of ourselves. The right care varies from person to person. An anti-inflammatory diet may help some people, not others. Metaprolol may be a boon to some and put others to sleep. Life is an on-going experiment for all HCM and non-HCM folks alike, but for we HCMers, the experiment is in finding the right combination of doctors, drugs, surgeries, lifestyle, and diet that curbs our symptoms and makes us feel better.

          Anti-inflamatory diet might help, or it might not. If thought it might work for me, I would talk it over with my doctor. If he did not positively say it would be dangerous, then I would try it. But I'd drop it like a rock if it didn't help after a reasonable trial.

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          • #6
            Thank you this actually answer a question for me as to why I am symtomatic after eating. This site is awesome. However, I will let my HCM Doctor know on my next visit next month.

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            • #7
              Follow a heart-healthy diet and stay hydrated.

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