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marcwhite Find out more about marcwhite
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  • Excercise

    I was just diagnosed with HCM, and perscribed a beta blocker. I'm a long distance cyclist (50mi+). any ideas of what I can anticpate relative to endurance?

    BTW I'm on Toprol XL 25Mg
    Last edited by marcwhite; 09-27-2012, 11:59 AM.

  • #2
    Re: Excercise

    Uh - Did your doctor mention NOT to do this? Did he say its OK but wear a heart monitor and limit your HR to a specific number? Did he (assuming a guy) mention getting your kids, your siblings echo'd?

    If you answer no to any of these, its best NOT TO unless you get clearance from a doctor who is trained SPECIFICALLY in HCM. Very few are and most of us go to a COE and see an expert every so often. They work with your local doctor in your care.

    As for the beta blocker - it'll make you tired & lack energy at first. They do take a while to adapt to, usually 2-3 weeks. You may see some limitations in high doses, but HCM and our Meds never behave the same for any us. HCM is very fickle in that we all have different "stats", reactions, limitations, etc., which is why an expert is so important.

    Sorry readers for the caps today - its one of those days!
    Marc
    Diagnosed @ 48
    Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
    Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
    AICD - Valentines Day '08, Spark Plug replaced 11/14
    After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
    Quietly going insane . . .

    Comment


    • #3
      Re: Excercise

      Do expect everyone to be a little be shocked at you being a long distance cyclist. Any medium endurance exercise over an hour is considered very high risk to anyone with our problem. I'll let you and your doctor decide if you can continue without judging you. Please be sensible about it.

      I used to cycle 20+ miles a day in the summer a few years back. Still have the bike, but I don't go as far anymore.

      How your endurance is affected will depend on the exact state of your HCM. Forcing your heart rate lower could improve your endurance. It did improve noticeably for me back when I was first diagnosed. And it lowered my endurance in more recent in the last several months before I had my open heart surgery this year. In addition expect some fatigue and subtle mood alterations as those are fairly standard side effects of beta blockers.

      Comment


      • #4
        Re: Excercise

        My doctor cleared me for road cycling on flat with a heart rate below 130. No mountain biking and no rides with groups where I might be pushed harder. I rode to work (8 miles) several times this summer and did several rides on one of the flat cycling paths here in Seattle. I've done up to 20 miles, but it is far less distance and strenuous than I was riding last summer before I was diagnosed. I haven't had any issues and I kept it within my limits. I did not ride after initial diagnosis until I was cleared by the HCM Specialist and took it really slow at first.
        Chris
        45 - husband & father of two, Bothell, WA (Seattle suburb)
        Designer & Creative Director
        Diagnosed September 2011
        100mg Atenonol
        Saving and planning for a myectomy

        Comment


        • #5
          Re: Excercise

          I agree with Marc; one of the really important things you can do is to find out more about HCM in general and your own heart in particular. The good news is that most people with HCM -- if they're under proper treatment -- don't have severe limitations to what they can do, and they live about as long as anyone else. But the "having proper treatment" part is the key; it will depend on your knowledge and your awareness, as well as on getting medical advice from someone who's knowledgeable about HCM.

          I don't mean that as an insult to your doctor -- she or he may be great and may know a lot about HCM. But most don't know that much about it, which is why many of us see specialists at one of the Centers of Excellence. One near you is at Hopkins in Baltimore. One thing you might do is to call the HCMA office and talk to them about what you do know, what you need to know, and how to pick a specialist. They do this all the time and are quite helpful!

          People vary a fair amount in how they react to beta blockers, and (a) all beta blockers aren't the same, and (b) it takes some time before your body adjusts. In other words, don't be surprised if some experimentation in dosage and in the drug used proves to be necessary.

          As to biking, that's something you'd do really well to discuss with a specialist. In the meanwhile, stay active, but avoid pushing yourself hard.

          Gordon
          Myectomy on Feb. 5, 2007.

          Comment


          • #6
            Re: Excercise

            Thanks for your comments

            She cleared me to ride again. I wear a heart monitor when I work out, she did not tell me to. She did say (and I did tell) my son to get an echo.


            Originally posted by mbcube View Post
            Uh - Did your doctor mention NOT to do this? Did he say its OK but wear a heart monitor and limit your HR to a specific number? Did he (assuming a guy) mention getting your kids, your siblings echo'd?

            If you answer no to any of these, its best NOT TO unless you get clearance from a doctor who is trained SPECIFICALLY in HCM. Very few are and most of us go to a COE and see an expert every so often. They work with your local doctor in your care.

            As for the beta blocker - it'll make you tired & lack energy at first. They do take a while to adapt to, usually 2-3 weeks. You may see some limitations in high doses, but HCM and our Meds never behave the same for any us. HCM is very fickle in that we all have different "stats", reactions, limitations, etc., which is why an expert is so important.

            Sorry readers for the caps today - its one of those days!

            Comment


            • #7
              Re: Excercise

              I was also a long distance biker (mtn and road) and got diagnosed with HCM. I have an ICD and was also prescribed toprol 25mg. I took it for a month or so and told my doctor that I was no longer taking it. The reason was, as mentioned in other replies, made me tired and reduced my energy. After a few months my doctor asked me to try it again but take it at night before bed. I did and it made a difference. I have gone on very long rides and I do not notice any reduction in my endurance.
              I continue to ride and exercise as before just not as fast and strenuous. My personal choice and my doctors are aware of it.

              Comment


              • #8
                Re: Excercise

                Thanks for the feedback. I needed it. I road on Sat-not very far-and was noticably slower (not that I was very fast to begin with). Are you still on 25MG? My Dr. told me to take it at night as well.

                Originally posted by Lumax View Post
                I was also a long distance biker (mtn and road) and got diagnosed with HCM. I have an ICD and was also prescribed toprol 25mg. I took it for a month or so and told my doctor that I was no longer taking it. The reason was, as mentioned in other replies, made me tired and reduced my energy. After a few months my doctor asked me to try it again but take it at night before bed. I did and it made a difference. I have gone on very long rides and I do not notice any reduction in my endurance.
                I continue to ride and exercise as before just not as fast and strenuous. My personal choice and my doctors are aware of it.

                Comment

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