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JOHNNZ Find out more about JOHNNZ
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  • Fitness Improvement Slow?

    Hi all,

    This is my first post in here and I apologise if this topic has been covered before but I couldn't find any posts relating to it through the search function. First up here's my state of play with HCM

    I was diagnosed about 15 years ago (age 32), and at the time I had experienced none of the usual symptoms. Now, of course, I notice anything from heart flutters, palpatations, and head-spins. Whether these were occurring or not before I was diagnosed, well I'm just not sure. These symptoms occur infrequently, I have never passed out, I have never felt faint.

    I take no meds, but have had an ICD implanted - my choices and I don't really want to get into a discussion about them.

    My question is regarding fitness. I've never been a sports bunny, but have kept myself trim via diet and a minimal amount of exercise, usually hiking, yet I've never been very fit. However recently I've been hiking a lot more (OK'ed by my cardiologist) and I expected an improvement in my fitness. However I still seem to struggle with inclines as much as I did prior to the increase in hiking.

    So I'm wondering do people with HCM improve their fitness at a slower rate than non-HCM people?

    I can't seem to find an answer to that anywhere.

    Any responses greatly appreciated!

    JB

  • #2
    Re: Fitness Improvement Slow?

    It may be that the difficulty with inclines is a symptom of your HCM. It sure was for me. My difficulty with inclines continued to worsen until I had a myectomy. That was one of the things that really made me go ahead with the surgery.
    Daughter of Father with HCM
    Diagnosed with HCM 1999.
    Full term pregnancy - Son born 11/01
    ICD implanted 2/03; generator replaced 2/2005 and 2/2012
    Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

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    • #3
      Re: Fitness Improvement Slow?

      Wow, I'd not even thought of that! And it sort of makes sense I guess. So the theory is that I'll always struggle with inclines no matter what I do, surgery excepted?

      Comment


      • #4
        Re: Fitness Improvement Slow?

        Medications might help also. I had a few which helped the symptoms (and still do), but ultimately, they stopped working which is why I chose surgery. However, a trial of various medications would always be the way to go before resorting to surgery which is more of a last resort.
        Daughter of Father with HCM
        Diagnosed with HCM 1999.
        Full term pregnancy - Son born 11/01
        ICD implanted 2/03; generator replaced 2/2005 and 2/2012
        Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

        Comment


        • #5
          Re: Fitness Improvement Slow?

          Yeah, I'm keen to stay off meds if I can and surgery seems a bit extreme for me. I don't really have any of the major symptoms.

          I was just expecting a improvement in fitness with the increase in hiking.

          Oh well, I'll just have to live with it I guess.

          Many thanks for your replies, they have been most enlightening!

          Cheers

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          • #6
            Re: Fitness Improvement Slow?

            Be well, and don't be afraid of taking medication. It can really help you feel better so you can hike without feeling terrible.
            Daughter of Father with HCM
            Diagnosed with HCM 1999.
            Full term pregnancy - Son born 11/01
            ICD implanted 2/03; generator replaced 2/2005 and 2/2012
            Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

            Comment


            • #7
              Re: Fitness Improvement Slow?

              I don't feel terrible when I'm hiking I was just expecting an improvement in my fitness.

              To be honest when I'm out hiking I never feel any palpatations or flutters and all is good with the world

              May be I should discuss the lack of fitness improvement with my cardiologist? I just thought he would have mentioned it. Of course there is the option that I'm not trying hard enough

              Appreciate the reply Cynaburst

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