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  • #16
    Re: Cycling

    200m, thats about 320km, a long day-trip. In Norway we have an even longer one-day race. I's from Trondheim to Oslo, about 560km (350m). I did joined once. It's on the main road and we used road bikes with 29" wheels and slicks. I did it once just to have done it, but normally i dont like cyckling on roads with heavy traffic. The biggest problem was that i almost fell in to sleep during the night. The solution on that problem was a nice cup of 50/50 coffe and sugar. If i drink something like that today, with my HCM, the ticker would go bananas.

    I checked the RAGBRAI site, and it looks like a nice adventure. Bon Voyage tonbra.
    Last edited by Gabriel; 10-30-2010, 05:28 AM.
    Gabriel
    ------------------------------------------------
    I'm Norwegian and live in the Oslo area.
    Genetic HOCM diagnosed in 2008 (at 49) My kids are tested and found negativ
    Medical treatment:
    Isoptin Retard 120mg twice a day
    Amlodipin actavis 5mg once a day
    Albyl E 160mg once a day
    Septal myectomy and insulation of the pulmonary veins at 10 April 2012
    Interests: bicycling, skiing, yachting, ex-marathon'er and offcourse my kids future in general

    Comment


    • #17
      Re: Cycling

      Hello Susan

      To comment on your use of a heart rate monitor during exercise. I used to have one myself, but it's now broken. I always felt a bit restrained by the chest belt, and i had a feeling that it did slide downwads, so i never liked to use it.

      But, i will now purchase a new one so i can follow my HR. My doc's havent told me how far up i can go (i have no ICD "installed"), but it's always interesting to see how my body respond to training. It can also give a good hint to slow down if the HR is higher than normal during training. That can meen that my body is tired or that i have an infection in my body.

      I have, by nature, a fearly low max-pulse. It used to be around 180-190 (max-pulse can only in litle degreed be increased by training), but during a stress-test it was not more than 170 (after i started with my med.)
      My resting-HR is also by nature low. In daytime sometimes low-40. During a Holter monitoring i had as low as 32 when i was asleep.

      My last monitor was a POLAR and i'm keen to hear what kind you use, and if you, or other, have any recomendations regarding brands and/or models.
      Gabriel
      ------------------------------------------------
      I'm Norwegian and live in the Oslo area.
      Genetic HOCM diagnosed in 2008 (at 49) My kids are tested and found negativ
      Medical treatment:
      Isoptin Retard 120mg twice a day
      Amlodipin actavis 5mg once a day
      Albyl E 160mg once a day
      Septal myectomy and insulation of the pulmonary veins at 10 April 2012
      Interests: bicycling, skiing, yachting, ex-marathon'er and offcourse my kids future in general

      Comment


      • #18
        Re: Cycling

        Hi Gabriel,
        I use a simple Timex heart rate monitor. I bought the least expensive one I could find and it has more features than I'll use. I guess I probably should program it to "beep" when I get to the maximum heart rate that I've been ok'd to reach.

        On the bicycle, I use a Garmin "Edge" that measures all kinds of other stuff besides heart rate. (My boyfriend gave it to me when he bought a better model that you can connect to the computer.)

        But if I didn't have the Garmin, the Timex would work fine and I think you can buy a bracket so you could mount it on the handlebar so you could see it more easily.

        I agree about the chest strap -- sometimes I feel it restricts my breathing. But, I know I have hit a HR that caused my ICD to "monitor" me. So, I almost have no choice. I don't want my ICD to shock me because I pushed it way too hard.

        I don't like to mention details because everyone is different, but my ICD "monitors" me at 190, and would deliver a shock if I hit 214. I believe different people have different settings. My HR is usually about 70 when I first put my HR monitor on and I don't think my HR has ever been as low as yours.

        I do wonder whether beta blockers would allow me to run a little faster without getting my heart rate so high. I am not on any meds and I guess you never go on meds unless you really must.
        Susan
        Diagnosed at age 53 in April 2010 (after having been
        "cleared" several times)
        Into running & cycling - cleared to continue at mild to
        moderate level
        Extensive family history
        Lost my mom, aunt and nephew to SCD
        St. Judes "Fortify VR" ICD implanted 8/30/2010 "Ces't Watt"

        Comment


        • #19
          Re: Cycling

          Hi Susan

          Thank's for your information. I will look at the Timex one, but i'm sure it gonna be one with a lots of function (i'm a bit techno/gadget freak)

          About meds; i take them every day as my doc prescribe.
          I dont know if beta blockers will lower your max-HR like my med do. Thats why i cant go as fast as i would because the muscles dont get the required amount of oxygen transported by the blood.
          Gabriel
          ------------------------------------------------
          I'm Norwegian and live in the Oslo area.
          Genetic HOCM diagnosed in 2008 (at 49) My kids are tested and found negativ
          Medical treatment:
          Isoptin Retard 120mg twice a day
          Amlodipin actavis 5mg once a day
          Albyl E 160mg once a day
          Septal myectomy and insulation of the pulmonary veins at 10 April 2012
          Interests: bicycling, skiing, yachting, ex-marathon'er and offcourse my kids future in general

          Comment


          • #20
            Hi!

            It´s amazing to know that we can turn our condiction better with myectomy. I had a cardiac arrest in December, 2012 and now I had an ICD in my chest in Hospital do Coração do Brasil (Brasília, DF - Brazil). I started to practice Mountain Bike since November, 2018, but I feel dyspnoea. Let´s fight to live!
            Last edited by marcelo_batista; 02-20-2019, 04:38 PM.

            Comment


            • #21
              Glad to see fellow cyclists here. Have you had a myectomy also? I had one over a year ago, but the benefits in terms of endurance were slight, although my heart sounds better.

              Wish you the best...

              Comment

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