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My daughter was diagnosed


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  • My daughter was diagnosed

    My 11 year old daughter was undergoing her annual screening this year when we were told that she has changed since last year and is now considered to have HCM. I myself have it and understand the lifetime of treatment and care she now possibly faces. I was so surprised, which I probably shouldn't have been but she has always been ok till this year. She is overweight and I struggle to think this also might have an effect but the doctors tell me no. So far we haven't done genetic testing. My son has screened as normal thus far and he is almost 15.

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  • #2
    Re: My daughter was diagnosed

    I'm so sorry to hear this, but sounds like she's got a Mom who understands the road she will travel. Hang in there !!
    Onward and Upward !

    Diagnosed 4/07 HCM with fixed & dynamic obstruction
    Myectomy with resected cordonae tendonae 4/08 CCF
    ICD 10/08


    • #3
      Re: My daughter was diagnosed

      Sorry to hear this but glad it was caught while she was young. I have hope that during her lifetime, research will change treatment and her outcome will be better than yours!
      Diagnosed @ 48
      Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
      Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
      AICD - Valentines Day '08, Spark Plug replaced 11/14
      After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
      Quietly going insane . . .