My husband has HOCM, and we are still awaiting results from his genetic testing. But we are wondering about testing our three boys (11, 8, 6).
Would echos yearly or twice yearly be enough to screen them? When did you start?
Have you had your kids genetically tested?
I have several concerns with testing (in jump-to-my-mind-order):
1)their ability to obtain life insurance as an adult if they test positive (thank goodness my husband already had it through work)
2) Unnecessary restrictions if they test positive but never have symptoms.
3) If we only use echos, how at-risk are they between tests? Even without heart growth (to be considered HCM) on a cellular level are they at risk for SCD or is that only once the heart starts to thicken?
Would echos yearly or twice yearly be enough to screen them? When did you start?
Have you had your kids genetically tested?
I have several concerns with testing (in jump-to-my-mind-order):
1)their ability to obtain life insurance as an adult if they test positive (thank goodness my husband already had it through work)
2) Unnecessary restrictions if they test positive but never have symptoms.
3) If we only use echos, how at-risk are they between tests? Even without heart growth (to be considered HCM) on a cellular level are they at risk for SCD or is that only once the heart starts to thicken?
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