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Congratulations Lisa on NJ legislation!

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Susank Diagnosed 4/2010. No symptoms. Stong family history including SCA. Find out more about Susank
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  • Congratulations Lisa on NJ legislation!

    Lisa,
    I was thrilled to read the HCMA email about the package of legislation here in NJ aimed at including cardiac screening/assessment at every well child visit. I know that was the result of many, many hours of tireless work on your part. What a great accomplishment to get this far!

    Hopefully, the 49 other states will follow suit. Thank you for all you do!!
    Susan
    Diagnosed at age 53 in April 2010 (after having been
    "cleared" several times)
    Into running & cycling - cleared to continue at mild to
    moderate level
    Extensive family history
    Lost my mom, aunt and nephew to SCD
    St. Judes "Fortify VR" ICD implanted 8/30/2010 "Ces't Watt"

  • #2
    Re: Congratulations Lisa on NJ legislation!

    Yes Lisa thank you and congratulations!

    Beejay

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    • #3
      Re: Congratulations Lisa on NJ legislation!

      Thank you Lisa for all the work you do that educates and helps more people, including doctors, about HCM.

      Comment


      • #4
        Re: Congratulations Lisa on NJ legislation!

        THANKS... been off the board for a while.. back now!
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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        • #5
          Re: Congratulations Lisa on NJ legislation!

          That is great, do you know if any other states have adopted legislation since then?
          Cardiologist Testing: Early September, 2014
          HCM COE Testing: Late September, 2014
          HOCM diagnosed by Dr Marcos Hazday
          AICD implanted: Oct 7th, 2014

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          Today's Birthdays

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