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Young Athletes

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hjehrlich Find out more about hjehrlich
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  • Young Athletes

    I was diagnosed with HCM after collapsing while playing basketball at age 39. We have had our children screened annually every since. The cardiologist has just informed us that my son's heart walls are showing signs of thickening. He is 15 and an avid soccer player. Does this diagnosis mark the end of his soccer career? Are there any surgical options that would allow him to keep playing?

    Thanks for your help.

  • #2
    Re: Young Athletes

    I guess the first question I would ask is there any history of sudden cardiac death in your family. The second question would be have you have him screened genetically. If the result is positive and he has have heart thickness . you need to have a serious conversation with a hcm specialist. Until it happens the result of this disease can feel like an abject idea. from my own experience the results can be devastating. My daughter was a varsity class athletes in sports.

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    • #3
      Re: Young Athletes

      sorry Didn't finish my reply. The risk is enormous . It's a very hard thing to decide.when it really goes bad it seems like an easy decision.

      Comment


      • #4
        Re: Young Athletes

        Unfortunately, competitive sports and HCM don't mix. So if your son has been diagnosed with HCM, then I'd have to say that yes, his career as a soccer player is over. Even those HCM patients who have surgery to reduce the size of their septums or have an ICD implanted aren't able to play sports that require sudden bursts of energy and/or stopping and starting. However, if your son's heart shows some thickening but it's not enough for a diagnosis of HCM, he may be allowed to play...but that is something, as the previous poster said, that you need to have a serious conversation with an HCM specialist about. (And I can't stress enough how important it is to seek out the care of an HCM specialist at a COE in order to make this decision.) There are so many factors to take into consideration and as with all things HCM, it is a decision that has to be made on a patient-by-patient basis, and a lot will depend on your son's heart and your family history as well as your level of comfort. I know of one other HCMA family - and the mom may very well post here if she sees your question - where the child is genetically positive and his heart is showing some signs of thickening, but it's not enough for him to be diagnosed with HCM, and he has permission from his COE cardiologist to play some sport - I think baseball? - for the time being.
        Last edited by NDFAN; 03-26-2012, 05:19 PM.

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        • #5
          Re: Young Athletes

          I'd also like to add that I'd take him to an HCM pediatric specialist. As from what I've heard there are different issues and the pediatric specialization in highly recommended. I am sure all the COE's have them, our daughters go to one at CCF.

          Best of luck.

          Toodle pip... Moosedreams
          Diagnosed HCM Nov 2009
          100 mg Atenolol; Baby asprin
          First Trip to CCF June 2010
          HCM Specialist at CCF... Dr. Harry Lever
          Septal Myectomy at CCF... August 9th 2010: Dr. Nicholas Smidera
          AICD w/pacer at CCF... December 20th 2010

          Once you choose hope, anything's possible. ~ Christopher Reeve

          Since we can not run in the park, we can be the ones to take a stroll, look around and enjoy the simple things in life. ~ Rosemaire1125

          www.TheRhubarbChronicles.com

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          • #6
            Re: Young Athletes

            Hi,
            My son, almost 10, who has the gene for HCM, started showing some thickening last year. We immediately went to a COE at Mayo, who said yes, there's thickening but not enough for a diagnosis and there is absolutely nothing wrong with his heart at this time. We had him rechecked 6 months later and everything was the same. We just had him checked again, 10 months later because he's going to play baseball and I wanted to make sure everything was fine before the season started not at the end.

            My son has been given the approval, both by Mayo and by our pediatric cardiologist here (who knows the pediatric cardiologist at Mayo and corresponds with him about everything) for our son to play baseball. However, they did not approve soccer and I would feel really uncomfortable with soccer given all the running it entails. We wouldn't be letting him play baseball, even with just the gene, unless our cardiologist's had approved it.

            I did go out and purchase an AED to bring with me to all of my son's games. I think some people think that's crazy as he doesn't have the condition, but I just feel a bigger sense of security knowing it's there, just in case, God forbid, something happens. He's being monitored closely and he doesn't have the condition yet, but we know it's coming and for us, doing everything this way works. Please talk to someone at a COE to get advice on this.

            Please take care.

            Comment


            • #7
              Re: Young Athletes

              And just to add a footnote, IF he has HCM, he can still participate but in a different way. Discuss with his coach the seriousness of this diagnosis and how your son can still contribute to the team. Stats, drills, equipment are all part of the game and while is not as exciting as playing, it keeps him with his team-mates and being close to something he loves. Best of luck to you all!
              Marc
              Diagnosed @ 48
              Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
              Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
              AICD - Valentines Day '08, Spark Plug replaced 11/14
              After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
              Quietly going insane . . .

              Comment


              • #8
                Re: Young Athletes

                At the end of his Freshman football season my son at age 15 was told he could no longer play competitive sports. He has played organized sports since he was 4; football, soccer, basketball and expected to play all through high school. I agree with the above post, if he is not allowed to play soccer talk to the coach. My son is still a member of the football team and basketball team, he films, keeps stats and whatever else the coaches need him to do. He still travels with the team and attends all the practices. They have agreed to keep him as involved as possible so he stays connected to his friends. After the initial shock and anger passed he has also ventured out into some new areas. He is now on the school bowling team, tried out for the school Peer Mediation panel and joined the environmental club since he likes to camp and fish. It was not an easy transition but don't under estimate your son's ability to adapt, sometimes it is we parents that have more trouble accepting the idea of what is happening to our children and the changes that are neccessary. How well he accepts the change if neccessary will depend greatly on his support system.

                Comment


                • #9
                  Re: Young Athletes

                  My son was diagnosed with Apical HCM. We took him to a HCM specialist in Kansas City. My son is 17 and this is his senior year. He played football and basketball. He was preparing to attend an elite football camp in July. He had been sick after coming home from a football camp. He was conditioning with his high school team and had an episode of chest pain, dizziness, and was unable to catch his breath. I took him to our family Doc and they did an EKG that as he said was extremely abnormal. My son has the rarer form of HCM. Only about 3% of people with HCM have the apical type. The HCM specialist really thought that his heart looked healthy when he looked at the Echocardiogram. The MRI with contrast showed the fibrous disarray in the heart muscle. My son was pretty devastated when he found out he could never play competitive sports. He had college recruiters looking at him for scholarships. My sons coaches really wanted him to stay involved with the team but he couldn't do it. He wasn't able to handle being on the sidelines. He seems so sad and lost but he refuses to talk about it with anyone. Im so very blessed that we found out he has it before something terrible happened. I think that if it was a requirement that young athletes be given an EKG before they were cleared to play we could save lives. We've only been dealing with his diagnosis since July so my heart goes out to those that are dealing with the same thing. I've been praying that my son will find something that he enjoys as much as he did sports. God Bless :0)

                  Comment


                  • #10
                    Re: Young Athletes

                    You raise a very important and difficult question that doesn't have easy answers. A key question that has already been mentioned is whether you have any history of sudden cardiac death in your family. It is imperative that you have your son evaluated and an HCM Center of Excellence, and equally imperative that you take their advice. It can be a crushing blow for an athlete to be told he must give up sports, but HCM can be a dangerous, and sometimes even deadly disease.

                    I also suggest you contact the HCMA as they can guide you though a risk assessment.

                    All the best to you and your family, and happy holidays!
                    Susan
                    Diagnosed at age 53 in April 2010 (after having been
                    "cleared" several times)
                    Into running & cycling - cleared to continue at mild to
                    moderate level
                    Extensive family history
                    Lost my mom, aunt and nephew to SCD
                    St. Judes "Fortify VR" ICD implanted 8/30/2010 "Ces't Watt"

                    Comment


                    • #11
                      Re: Young Athletes

                      I was diagnosed with HCM toe days ago (still haven't slept much..)
                      This website and it's forum have been great for information

                      Question:

                      How much did the AED machine cost, is that something insurance companies pay for.?.




                      Originally posted by mandksiders View Post
                      Hi,
                      My son, almost 10, who has the gene for HCM, started showing some thickening last year. We immediately went to a COE at Mayo, who said yes, there's thickening but not enough for a diagnosis and there is absolutely nothing wrong with his heart at this time. We had him rechecked 6 months later and everything was the same. We just had him checked again, 10 months later because he's going to play baseball and I wanted to make sure everything was fine before the season started not at the end.

                      My son has been given the approval, both by Mayo and by our pediatric cardiologist here (who knows the pediatric cardiologist at Mayo and corresponds with him about everything) for our son to play baseball. However, they did not approve soccer and I would feel really uncomfortable with soccer given all the running it entails. We wouldn't be letting him play baseball, even with just the gene, unless our cardiologist's had approved it.

                      I did go out and purchase an AED to bring with me to all of my son's games. I think some people think that's crazy as he doesn't have the condition, but I just feel a bigger sense of security knowing it's there, just in case, God forbid, something happens. He's being monitored closely and he doesn't have the condition yet, but we know it's coming and for us, doing everything this way works. Please talk to someone at a COE to get advice on this.

                      Please take care.
                      Cardiologist Testing: Early September, 2014
                      HCM COE Testing: Late September, 2014
                      HOCM diagnosed by Dr Marcos Hazday
                      AICD implanted: Oct 7th, 2014

                      Comment


                      • #12
                        Re: Young Athletes

                        $1200-1700 online, last I looked a month or two ago. Not sure about insurance. Now get some rest!
                        Angus Campbell
                        Golden Isles Region, Southeast Georgia, USA

                        Dx'd HOCM at St Luke's Roosevelt, New York City, 2005
                        Myectomy Jan 9th 2014 at Cleveland Clinic
                        Drs Lever and Smedira

                        Comment

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