[Esquire - November 2002 - link to the article]

Author: Erica (---.biz.dsl.gtei.net)

Date: 10-23-02 16:41

Here is the link to read the Esquire article ... the story just went live: http://www.esquire.com/features/arti...fe_pete_1.html

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[Re: Esquire - November 2002 - link to the article]

Author: Amy Williams (---.proxy.aol.com)

Date: 10-23-02 17:53

Erica,

Thanks for the link. I was not able to get Esquire, as I live in England. I may have to make the decision between alcohol ablation and the surgery. I will know in November. My heart became obstructive when I was pregnant. My resting gradient was 100 at the end of my pregnancy. I'm hoping that my heart has returned to its pre-pregnancy condition...but I'll know next month. I was wondering what the procedure felt like - well now I know...at least from 1 persons point of view.

Amy

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[Re: Esquire - November 2002 - link to the article]

Author: Erica (---.atlnga1.dsl-verizon.net)

Date: 10-23-02 17:57

Amy ... No problem. Best wishes no matter which road you take! I will let you know how my dad felt after his procedure...it's soon 12-Nov-2002.

I hope you feel better soon! ~ Erica

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[Re: Esquire - November 2002 - link to the article]

Author: Sarah B.-Board Moderator (---.client.attbi.com)

Date: 10-23-02 18:55

Dear Amy,

Please visit and contact the Cardiomyopathy Association in the UK at cardiomyopathy.org. They can get you hooked up with the UK docs --several of whom are excellent and I got to meet earlier this month. Great guys!

take care,

Sarah

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[Re: Esquire - November 2002 - link to the article]

Author: Amy Williams (---.proxy.aol.com)

Date: 10-24-02 06:21

Thanks Sarah,

Fortunately, I actually work for the Britsh CMA and I am blessed with having a top HCM specialist. I will see him in Nov and find out what my heart is up to. I'll keep you posted.

Thanks, Amy

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[Re: Esquire - November 2002 - link to the article]

Author: Lisa Salberg (---.dyn.optonline.net)

Date: 10-24-02 08:54

Yes Amy is lucky to have one of the best in the world!

lisa

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[Esquire article]

Author: cynthia (---.cap.east.verizon.net)

Date: 10-24-02 11:14

Thank you for posting this link. Someone put a lot of research into it. I have a question, though, about the gradient. The article said his exercise gradient was (paraphrasing) a ridiculously high 100. Is that standard thinking? From what I understand, my gradient is 100 at rest, but I don't have the symptoms he is describing.

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[Re: Esquire article]

Author: Lisa Salberg (208.47.172.---)

Date: 10-24-02 13:20

Some may have a high gradient but no or few symptoms. A gradient of over 50 is the number most use as the standard for surgury. However, if your not having symptoms, why have a major procedure.... that is the common thinking. I would say that it would be likely that sometime in the future you may have to look at options for reduction in gradient by means of medications or septal reduction.

Best wishes,

Lisa

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[Re: Esquire article]

Author: cynthia (---.cap.east.verizon.net)

Date: 10-26-02 19:24

Lisa,

Thanks for putting it perspective. I had surgery as a child and am currently on a beta blocker. Everyone says it is so different today than it was 20-some odd years ago. I hope thats true.

cynthia

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[Re: Esquire article]

Author: Erica (---.biz.dsl.gtei.net)

Date: 10-30-02 14:19

Good news! My letter to the editor will be published in the January 2003 edition!

~ Erica Stolzenberg

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[Re: Esquire article]

Author: Erica (---.biz.dsl.gtei.net)

Date: 10-30-02 14:24

Cynthia ... I am sure the ablation will also be different in 20-some years from now! Maybe it will be the be next gold-star procedure! Time will tell. For now it's a promise to the older folks and to those younger folks who have faith that it will improve the quality of their lives, too! To each his own ... just feel good and be well and see what your HCM specialist recommends! It's not so bad to keep an open mind, listen to your body and do what makes you feel comfortable. You only get one life! Enjoy and smile : )