[does it worse?]

Author: Wouter (---.telenet-ops.be)

Date: 01-27-02 08:11

Hi, my name is Wouter. I'm from Flanders, so I hope everybody will understand what I would like to say.

When I was 17 I didn't feel me well at all: I had chest pain when I did a little tension, and I hadn't much breath. So I went to a local doctor. He sended me to a cardiologist. The cardiologist told me I needed to be operated asap, because there whas a hole between my left and my right heart chambre (?). So I went to the hospital of the university of Leuven, to make an appointment. When they did an investigation over there, they said I had HCM, and they couldn't do anything to it. The hole I had was even to little to operate! They told me to take Verapamil (Lodixal), but only half a pill (120mg), because my blood pressure is to low.

Till I was 19, I could to less and less, and it didn't stopped! But when I was about 19, I staid stabil.

I'm now 21. I don't have much of the problems I read here, or they are not so bad.

I'm quiet good now: my chest pain is gone, thanks to the drugs, my condition stays stabil (I can do a whole staire (I'm a little bit tired, but that's it))and now and then, my heart skipped a beat. So for me HCM is just a discomfort.

Much of the writers are minimum 25 years old, so can it be that, untill a year of 4, I have also al those symptoms?

It's frightening if you don't know what will happens in the future, so I would like to know it.

Thanks, Wouter

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Re: does it worse?]

Author: Amy Woods (164.119.203.---)

Date: 01-28-02 16:34

My symptoms started at age 18, I had the alcohol ablation at age 24 and have had no symptoms since then.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Re: does it worse?]

Author: beckley (---.muaa.akrn.chcgil24.dsl.att.net)

Date: 01-29-02 12:07

HI!

The key thing to understand about HCM is that everyone seems to have their own personal version. My mom's is different from mine and my brother's -even though we all got it from the same place!

The best predictor of your future is your present. Are you eating healthy and doing moderate, safe exercise and taking your medication as prescribed? Do you feel well and happy? Great!

If someone is under a lot of stress, then sometimes they will have more symptoms than at other times.

The posts you are reading on the board are from people who have the same disease in name only. There are many variations of the disease and your future depends on what kind you have and how thick the hypertrophy is. You may only have a very mild thickening while someone with a very thick hypertrophy will be very sick.

So don't worry about it, just take care of yourself and enjoy life.

Sarah

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Re: does it worse?]

Author: shannon (---.oshw.interhop.net)

Date: 03-27-02 13:04

Dear Wouter,

It's hard to sat what you can expect in the future. It's hard to know anything about this disease, whether it will continue to worsen or not or whether your symptoms will get worse or not. I was diagnosed with my HCM when I was 23 years old and I'm now 25. I have a very mild thickening of the septum but I'm very symptomatic. I have chest heaviness, palpitations, breathlessness and leg pressure when I climb the stairs. My doctors are unsure as to why I have so many symptoms, they keep looking for other reasons, my iron levels, thyroid, etc. all checked out o.k. My ekg shows however that there isn't enough blood flow to the heart. But they say not to be too concerned about it. Now they are sending me to another specialist who's had an IHSS clinic now for 30 years so maybe I'll get somewhere with them. Sorry I can't answer your question about what to expect in the future but like Sarah says everyone is different. Lifestyle has a lot to do with it. For instance, do you smoke or drink, get enough rest, eat properly, etc.

Take care,

Shannon