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Who will screen me?

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  • Who will screen me?

    [Who will screen me?]

    Author: Julie Petitpas (---.proxy.aol.com)

    Date: 10-19-02 22:42

    Just looking for a little advice here. I'm sure you have seen my name here plenty of times in the past few weeks but........I haven't stopped toask who will do my screening? My primary care doctor? Or do I need to go to a specialist first? Will my insurance cover it since I'm at risk? My little brother just died from HCM. Do my children need to get screened also? Please help if you can.

    Thank You

    Julie P

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    [Re: Who will screen me?]

    Author: Reenie Smith (---.snbrca.adelphia.net)

    Date: 10-20-02 01:05

    Julie,

    I don't think you need to start with a specialist for yourself. You should go to your primary care doctor and tell him about your brother. He will refer you for an echo. Make sure the doctor who reads the echo knows your family history. When you get the results of your test you can make a more informed choice about specialists. As far as your children go, yes they should be screened. Even if you don't show HCM.

    The strange thing about HCM is that although it's a dominant genetic trait, it appears that you can rarely have the gene and not express the symptoms. (enlarged septum) For instance, my husband has a remarkable case of HCM. His septal measurement is 3.8 cm or more. That's pretty big. But about 10 years before his diagnosis (age 35) his parents both had echos for unrelated reasons. Neither of them showed any signs of HCM. Recently his grandmother had some arrhythmias and found out she has congestive heart failure and dilated cardiomyopathy. She'll be 90 in 2 weeks. When my sister in law mentioned the history of HCM in the family - meaning my husband - the doctor seemed to think it might be related. We know of nobody else in the family who has this and it appears that perhaps my mother in law carries the gene and doesn't express the trait. We won't ever know because she won't ever get another echo unless she starts having problems for herself. She doesn't think it matters. Honestly, I don't understand family members who don't deem it important to get themselves tested, but that's a whole other thread.

    I hope you get yourself and your kids tested. You will feel better knowing either way. Good luck to you and sorry for such a long and rambling post.

    Reenie

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    [Re: Who will screen me?]

    Author: Julie Petitpas (---.proxy.aol.com)

    Date: 10-21-02 08:55

    Dear Reenie,

    Thank You for taking the time to answer my question. So many who know nothing or very little about HCM tell me I have nothing to worry about. They think I have passed the age my brother was (I'm 33) so I don't have to worry. Of course i know better.

    My little brother and I share the same Father but, not the same Mother. I try to tell everyone in my immediate family to get tested but, they are putting it off. Will insurance generally cover an echo?

    Thanks Again,

    Sincerely,

    Julie P.

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    [Re: Who will screen me?]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 10-21-02 08:57

    A general cardiologist can do the screening, make sure you let them know just what they are looking for am\nd ask for a copy of the results asap. You want your septal, left free wall and atrial measurments to start with - when you get that call me and we can go over it further.

    Yes, your insurance should cover it, however read your plan 1st!

    Lisa

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    [Re: Who will screen me?]

    Author: Erica Stolzenberg (---.biz.dsl.gtei.net)

    Date: 10-21-02 14:30

    Hi Julie! I hope you are well. All I had to do to get my echo was make an appointment with my primary care physician, PCP, (I didn't have a cardiologist) tell her my situation ... she wrote out a form for the echo procedure and that was it. I scheduled the echo for two days later (on a Friday) and I had the result that following Tuesday. I requested to have a copy faxed to me, too!

    The tecnician was great, though. She explained everything we were viewing on the monitor so I knew some of my measurements that same day ... of course I didn't understand what it meant back then!
    NOTE: This is a post from the previous forum message board.

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