If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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  • Life & HCM

    [Life & HCM]

    Author: Jason (---.ushwy1.com)

    Date: 10-17-02 23:55

    Hello, I was diagonosed with HCM about two years ago. I dont really know any thing about this condition. I know how is diagonosed, treatments, what causes it. ETC. ETC. What I dont know or understand is every day life. I now work for Home Depot, the building materals department, lumber, concrete, sheetrock. I have been working here full time since march 2002. I have been having some pains in my chest, so I told my doc about this. He tells me I should not be doing this type of work. So I have to change my department. I guess my question is this. What can I do? What can't I do? Am I supposed to exercise? I bet some of you will say ask your doctor or specialest, but they both knew I worked at home depot. Seems they waited till I came to them with my chest pains to tell me I cant do that. What can I do? What can't I do. Where can I, Myself go, and or read to find out. Everything I read just tells me the same things, cause, drugs and so on. Can I play sports at all? What do I eat? I know and read alot of what everyone here says and write, so I know you all probaley understand this. Please let me know. Thank you.

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    [Re: Life & HCM]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 10-18-02 00:50

    Dear Jason,

    There is just no simple answer to your question. HCM is different in every single person and the most important parts are yes, to see a specialist and to listen to your body. CHest pains tell me that your heart is telling you to slow down.

    You can eat whatever you want --please read the posts on this first page as there is a lively nutrition diet conversation in there. Actually, you should try and read as much of the board as you can since there are a lot of conversations in there about day to day life.

    Here is where you can talk to other people about what they can and can't do.

    I would ask you what medications you are on and what your septum is and have you had any arrhythmias and what is your family history? All of these inform the decisions you need to make about what you do and don't do.

    I know a bunch of people will chime in here, too. Please call the HCMA office at 973-983-7429 to become a member and get the official HCMA patient's guide to HCM.

    take care,

    Sarah

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    [Re: Life & HCM]

    Author: Glen (65.247.42.---)

    Date: 10-18-02 08:52

    Hi Jason, You have much to learn and the first thing you will learn if you go back in this forum and continue to monitor it in the future is that there is no easy answer from anyone here to your question. You will get life experiences, advice and support.

    Absolutely every case of HCM/HOCM is different in every person.

    I was diagnosed over 30 years, I just turned 54 and at that time I was doing distant running and started having your symptoms. At that time I was put on a Beta Blocker and told NO MORE EXERCISE.

    Over the years as they have learned more about HCM, they and I have learned my HCM is not as bad as most and for the past 10 years I am allowed moderate exercise so I ride bikes regularly. But that may or maynot be the case for you.

    You will see from other postings that it varies from moderate exercise in my case to absolutely no exercise to can hardly get up to go to the toilet without getting exhausted.

    If your specialist is an HCM specialist then he can advise according to your test results. If he is not an HCM specialist then you need to go to one so that you will get the best possible advice.

    I have learned more in the last year monitoring this forum than I did in the previous 30. It will arm you with enough information that when you go see your HCM specialist you will be able to carry out a very intelligent interview with him/her and get the information you require.

    Good luck and stay well

    Glen

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    [Re: Life & HCM]

    Author: Reenie Smith (---.snbrca.adelphia.net)

    Date: 10-18-02 09:50

    Jason,

    The simple answer to your question is listen to your body. If you are having chest pains, you are over exerting yourself. I agree with others that it's a way for your body to tell you to slow down. As far as sports and such go, again you must listen to your body. I would think that sports such as baseball, football, raquetball, and basketball may be too strenuous for you. Golf, swimming, biking, and walking might be better choices. And Glen is absolutely right when he says this forum is a wonderful place for information. I have learned a lot here. But please keep in mind that every person is very different. Good luck and welcome to our board.

    Reenie

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    [Re: Life & HCM]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 10-19-02 13:46

    Jason

    Yes we are all different...but in my experience with treatment from a specialist and a good understanding of the disease people feel better and have a better quality of life. You can choose to feel well and take steps to do so, but you and only you can take those first steps. Sometimes out hearts "win" and symptoms do not decreasae, however in 90% of cases they do get better.

    Specialists.Specialists.Specialist...that is the difference

    OK here is the trick - step one here is get to a specialist - -

    Step 2 if your health is not well matched to your job - you will have to make a change - as a Human Resource Manager I deal with people and employment issues everyday..It is OK to change types of work... you may have to rethink your options a little.

    Take it slow...think it out and do what is best for you and your health!

    Lisa
    NOTE: This is a post from the previous forum message board.

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