If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Advocacy Tips

Collapse

About the Author

Collapse

HCMA FORUM ARCHIVE Find out more about HCMA FORUM ARCHIVE
This topic is closed.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Advocacy Tips

    [Advocacy Tips]

    Author: Erica (---.atlnga1.dsl-verizon.net)

    Date: 10-15-02 21:01

    Here is a link if you are interested in writing your representative service: http://www.house.gov/writerep This link will assist you by identifying your Congressperson in the U.S. House of Representatives and providing contact information.

    Below you will find tips on writing to Your Policymakers & some important steps to take:

    ·Keep a letter to a single page.

    ·Do not use a form letter.

    ·Cover only one topic or issue.

    ·State the purpose at the outset.

    ·Enclose applicable editorials or position papers.

    ·Ask your policy maker for a response.

    ·Identify yourself and your organization.

    ·Provide a courtesy copy to your organization.

    ·Thank your policymaker for his/her cooperation.

    ·Describe legislation by its bill number.

    ·Be polite/give reasons for support.

    ·Include recipient's name and address on both envelope and letter.

    ·Write legibly or type.

    ·Send a note of appreciation when the issue is supported.

    Make sure to address your Senator or Representative as follows:

    The Honorable ________________

    U.S. Senate

    Washington, DC 20510

    Dear Senator _________:

    The Honorable ________________

    U.S. House of Representatives

    Washington, DC 20510

    Dear Representative ________________:

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Additional advocacy tips]

    Author: Erica (---.atlnga1.dsl-verizon.net)

    Date: 10-15-02 22:53

    -Contact congressional representatives by phone.

    -Write congressional representatives a letter.

    -Schedule multiple follow-up calls with each representative.

    -Meet in person with your representative if possible.

    -Write a letter to the editor of your local paper.

    -Contact the health editor of your local paper and educate them on on the issue.

    -Contact your local TV news and radio stations and educate them on on the issue. Offer to do an interview.

    -Let your friends and colleagues know about the issue.

    -Old-fashioned typed or handwritten correspondence (snail mail) is more persuasive and noticed than email.

    **Make them aware of this Website so they can become more familiar with the issue.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Advocacy for HCM education ...]

    Author: Erica (---.atlnga1.dsl-verizon.net)

    Date: 10-15-02 23:10

    I sent out many emails this evening. Here is one response I received. It may turn into something or nothing at all ... but it's a push in the right direction! Baby steps! ~ Erica Beth Stolzenberg

    *********************************

    Thank you for your e-mail to the AMA in Washington. We will make every effort to ensure that your message is passed on to the appropriate individual for a reply. However, due to the volume of e-mails we receive, we can not guarantee a response. Thank you for you understanding.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [CDC database]

    Author: Erica (---.atlnga1.dsl-verizon.net)

    Date: 10-15-02 23:51

    The Centers for Disease Control and Prevention does not list Hypertrophic Cardiomyopathy to their list of Health Topics. I submitted a request asking them if would add HCM. We shall see.

    Feel free to send the same request. Maybe if they receive multiple requests they will consider it since they update their site four times a year. http://www.cdc.gov/netinfo.htm
    NOTE: This is a post from the previous forum message board.
Working...
X