If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

New to this disease

Collapse

About the Author

Collapse

HCMA FORUM ARCHIVE Find out more about HCMA FORUM ARCHIVE
This topic is closed.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • New to this disease

    [New to this disease]

    Author: Lori (---.dialsprint.net)

    Date: 10-08-02 21:55

    There are a couple of terms I do not yet understand.

    Like resting gradient

    That alcohol surgery

    There was one other surgery also

    Also, to the people who have lost loved ones to this disease, my condolences.

    Know that with each person that has passed away and your loss has made it better for the rest of us and our children.

    I believe something good always comes from the pain we experience.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: New to this disease]

    Author: Lori (---.dialsprint.net)

    Date: 10-08-02 22:42

    What about the book everyone says is available?

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: New to this disease]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 10-09-02 01:25

    Dear Lori

    If you call the HCMA office at 973-983-7429, you can buy the book and become a member for $50, and renewals are less than that (I can't remember exactly, but it is in the membership section of the web site). The book is "Hypertrophic Cardiomyopathy: For Patients, their families, and iNterested Physicians."

    Myectomy is a surgery where they cut away the hypertrophy on the septum (the wall between the ventricles).

    Alcohol septal ablation is a procedure where they inject ethyl alcohol into the septal hypertrophy which kills it and makes it go away.

    Gradient is the pressure of the blood flowing out of the heart. I am not as "up" on gradients as I ought to be. big sigh. I know someone here will post a detailed account for you shortly (or I will).

    take care,

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: New to this disease]

    Author: Glen (65.247.42.---)

    Date: 10-09-02 08:33

    Hi Lori, my understanding of Gradient is a pressure difference between the inside of the heart and the outside artery thru the aortic valve.

    If you have zero gradient that's great because the pressure inside and out is the same and that would indicate you have no blockage. (the thickened septem is not interferring with the valve)

    If you have some gradient say 15, which is fairly low, that means there is a pressure difference and usually indicates a slight blockage. (the thickened septem is interferring with the valve)

    If you had something like a 60-70 gradient this would indicate a higher pressure difference and a more severe blockage.

    They usually do a couple readings, one at rest and one during exercise to see if the gradient goes up and how much.

    People with a high gradient usually have more symptoms because of the blockage and this can often be relieved by the two procedures that Sarah mentioned above.

    Good Luck

    Glen

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: New to this disease]

    Author: Sandy (---.proxy.aol.com)

    Date: 10-09-02 08:58

    Nurse at Mayo explained "gradient"to me using the example of putting a finger on the garden hose to create higher pressure. Apparently the obstrucion in the heart has the same effect.

    Sandy
    NOTE: This is a post from the previous forum message board.

Today's Birthdays

Collapse

Working...
X