If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

Alcohol Ablation-Sooo worth it!


About the Author


Member of 1000 Post Club!
Find out more about HCMA FORUM ARCHIVE
This topic is closed.
  • Filter
  • Time
  • Show
Clear All
new posts

  • Alcohol Ablation-Sooo worth it!

    [Alcohol Ablation-Sooo worth it!]

    Author: Amy Woods (164.119.203.---)

    Date: 01-11-02 11:22

    I posted this same message as a reply to someone's question. I thought I would share my story with all of you. I had the procedure done in Oct. 1997, I was 24 yrs old. For all of you considering the procedure, here's what I went through and how I'm doing now, 4 yrs later.

    I had to go to Houston to have the procedure done as Dr. Spencer was the only one doing it in the US. I was admitted and they did all the prep work, IV, monitors, etc. The operating room had alot of people in it, which isn't very soothing. They prep the groin area, where the cath. will be inserted. This was a bit embarrassing, but they were modest about it. So once the cath is in, they bring over all these TV screens so they can inject dye and watch where it goes. This is cool cuz you can see the TV screens too. Once they are sure they have the cath in the right place, they inject the alcohol. Now I won't kid you here, it did hurt. Dr. Spencer said, "ok, now you're gonna feel some pressure in your chest." He didn't say they were gonna park an elephant there. It hurt, I cried, but it only lasted seconds, then the pain was gone. They then had to reposition the cath. and do another section. Same thing as before. The whole thing lasted 2-3 hrs.

    They sent me to the ICU for recovery. Here's another yucky part. They put a pressure bandage on your leg where the cath went in. I didn't realize how much pressure was needed until the nurse brought out a "C-clamp". This also hurt, but didn't last long. I was sent to another room that afternoon. I was in the hosp. for a total of about 48 hrs. I was told to do nothing for a week. No driving, working, sexual relations, cleaning.... That lasted about 2-3 days! I felt sooooo good, I had to see what I could do without getting dizzy!

    The results were immediate, my gradient went down to zero and I had absolutely no symptoms after that. I already had a pacemaker before the procedure, but it is shut-off. I don't need it at all. I'm on no medication either. Before the procedure I couldn't do anything without getting dizzy and blacking out. I had to walk very slow, climb steps very, very slow, stand up even slower. I didn't even think about doing any exercising. The dizziness, heart palps, chest pain, shortness of breath was just to much to warrant any physical exertion. I had these symptoms from age 18 upto the day of the procedure 6 yrs later. Now...I play volleyball, rollerblade, swim, chase after the dogs, fly kites, run up a flight of stairs (or 2!), anything I CHOOSE to do.

    I've had no complications, no return of the symptoms and the IHSS has not developed into other problems (like my mom had). I can't express to you enough how much I've improved and how the pain really was worth it. I was a 20 yr. old in 90 yr. old body. Now I have my life back.

    Praise the Lord and thank the Doctors!


    [Re: Alcohol Ablation-Sooo worth it!]

    Author: Eddie (204.243.154.---)

    Date: 01-14-02 12:26

    Good to hear you are doing so well. After reading some of the messages on this site, it is hard to believe that more people are not having it done, I also recommend this procedure; it has definitely been a lifesaver for me.

    Dr. Spencer was asking about you last month, I believe you are due for follow-up. Shannon is doing it in April and if you can come then, we can all do linch.



    [Re: Alcohol Ablation-Sooo worth it!]

    Author: Amy Woods (164.119.203.---)

    Date: 01-14-02 17:08

    I'll give them a call and see what they say. Glad to hear your doing so well. Has Matt been tested yet, or is it too soon?

    Shannon's upset that she get's the garage and we had Matt's room! Kidding!

    And by the way, what's your preference: Ed, Eddie, Charlie???



    [Re: Alcohol Ablation-Sooo worth it!]

    Author: Margaret Allyne Farris (---.25.5.25.Dial1.Memphis1.Level3.net)

    Date: 03-22-02 16:13

    Being your Grandmother, Eddie's and Shannon's Mother, and being of sound mind and perfectly good heart, my comments are that Dr. Spencer is due for sainthood.

    It is people like him who work on something that is needed and keep on till it works and helps hundreds of people..who deserve our admiration and support. I love it when I write to check to the Heart Fund. Makes me feel like I, too, am helping.

    I love you Amy. I am very happy for you.
    NOTE: This is a post from the previous forum message board.

Today's Birthdays