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  • 14 yr old son DIED from undetected

    [14 yr old son DIED from undetected]

    Author: Maura Mendoza (---.proxy.aol.com)

    Date: 10-03-02 08:27

    My name is Maura, I live in York Maine, My oldest Son Travis died suddenly at football practice on August 22nd, a strapping young man of 180 lbs and 5"10 ..It has been 6 weeks today...My life is not as it was and never will be. I have two younger sons 11 and 5 whom have been tested since Travis' sudden seath. They are clear so far but will continue to be tested every 18 months untill they are well into there 20's.Travis had several surgeries ( unrelated to HCM) his last being 3 yrs ago, why was this un-detected, why ??I was told his quality of life would have been substantialy different had it been detected as fat back as 5 yrs ago, He was a very active child, played lacrosse, skateboarded, surfed, and loved the thrills of four wheeling and bridge jumping ! I want the truth's. I know nothing will bring my baby back, but the answers swarm my head with what if's ??? I am raising money in his name to proved defibulators to all schools in southern maine, not that it would have saved my sons life, as an ER doc and trauma nurse were on the spot with in seconds of his going down ( so hard he bounced 3 times ) the one police cruiser here in York that had a difibulator was across the parking lot , the officer was teaching a drivers ed class, so he was shocked 7 times on the fireld with in minutes of going down, cpr was started immediately, and the emt's eppi'ed him 5 times directly into the heart, they worked on my son for over an hour before calling him deceased.... Heartbroken are those my son left behind.His death witnessed by over 300 children and parents. I am angered that he had just has a psychical to be able to play football only 3 weeks prior, no detection was made. I found out after he died that he told two friends he had blacked out recently, he never mentioned this to me. He was lethargic at times this summer , we chalked it up to being a teenager and having the lazies........how wrong we were. I am reaching out to others whom have lost a child to HCM. I am turning my anger into something positive, I know trying to change legislation on better psychicals is a long stretch, but I am willing to try. I was mislead on statistics, one out of every 500 children walks a death sentences undetected with this disease. I pray that I can spare one family the loss of there baby. Thank you for listening to me vent, I have found this sight both comforting and disturbing, disturbing to know we could have saved his life had we only known.......... Maura Mendoza 207-363-7294

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    [Re: 14 yr old son DIED from undetected]

    Author: Linda (---.wmnsmd.adelphia.net)

    Date: 10-03-02 09:35

    Dear Maura, My thoughts and prayers are with you and your family. Bless you for trying so hard to turn such a tragedy into something better for the rest of the world. I know you must feel so alone sometimes these days, but don't be afraid to reach out for help for YOU at those times when your reserves are depleted. You will find much support on this message board, support from those who have "been there", could be there, or may someday be there. My son was age 7 when diagnosed. We've had some very close calls with him, I've done mouth-to-mouth on him in a rather remote area that didn't even have 911. Yes, those places still exist in the USA. We were just 70 miles from Cleveland, not all that remote if you think about it. God has a plan for all of us. Your precious son had help by his side, my son's help was 45 min away to the nearest EMT, advanced life support was even farther out. I thank God daily, and still wonder how and why. I'm so glad to know your other sons are clear. I hope the rest of the family is being checked also. Best wishes to you all, Sincerely, LInda Price

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    [Re: 14 yr old son DIED from undetected]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 10-03-02 09:38

    Dear Maura,

    I am truly and deeply sorry for the loss of your son. This very day Lisa (the HCMA president, LInda Price- board member, and myself are attending a medical conference about HCM and sudden death in young athletes.

    Your experience is one that the HCMA hopes to erradicate. We are doing what we can to promote screenings, education, and placing defibrillators.

    Sharon Bates, an HCMA member, just finished another HCM screening in Kansas. PLease read the "screening threads" on the board. Click on her name in the posting heading to send her an e-mail. She also lost her son like you did.

    From what Linda has told me about kids and HCM, they tend to go "asystole" more than grown ups. That means that their heart just stops. It doesn't go into a dangerous rhythm that the paramedics can work with and try to bring you back from; it means that there is just not any heart beat at all. It sounds like that is what happened to your son since they worked on him for so long without success.

    While I know you would rather have your son here, he would probably not been happy to be barred from all the sports he loved so much. Some people take comfort in knowing their child enjoyed their life to the fullest while they were here.

    If echocardiograms were part of the physical for every student and professional athlete, many deaths could be prevented.

    You mention the kids screenings ---what about you and your husband? You both need echos too. You should get them every 5 years and once the kids are grown (30s) it should be 5 years for them too. Also, you and your husband's siblings and parent's should all be tested too. HCM is genetic.

    Implantable defibrillators could save the lifes of any family members who have HCM.

    Again, my deepest sympathies. You can call the office at 973-983-7429 to get on the mailing list, join, and talk to LIsa about screening and defibrillators. And anything.

    take care,

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: Bryan Lombardo (---.bos.east.verizon.net)

    Date: 10-03-02 10:23

    Maura I am sorry to hear about you and your familys loss. I think Sarah said what she said perfectly, that "If echocardiograms were part of the physical for every student and professional athlete, many deaths could be prevented." By my prior experience at a young age you can walk into a health clinic and get just the basic physical and pass, I did. You would think with all the student athlete deaths from heart failure in the world that colleges and highschools would make it mandatory for kids to get EKG's.

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    [Re: 14 yr old son DIED from undetected]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 10-03-02 10:29

    Bryan

    Even an ECG (EKG) is not always enough. Most people with HCM don't have a heart murmur or even an abnormal ECG --for a while anyway. Mine was normal till I was 16, for example.

    S

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    [Re: 14 yr old son DIED from undetected]

    Author: Lisa Salberg (---.proxy.aol.com)

    Date: 10-03-02 10:32

    Please know our thought are with you, I was contacted by the media in your area after the death of Travis, they asked me how this could happen, my responce was that early detection was the only hope and because screening is so poor in this country it was not likely that he would have been detected.

    I will write more later, I am on my was to MN for a large meeting on HCM... hopefully we will find ways to stop needless deaths in the future.

    God Bless Travis.

    Sincerely,

    Lisa Salberg

    President - HCMA

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: Lisa Salberg (---.proxy.aol.com)

    Date: 10-03-02 10:33

    Please know our thought are with you, I was contacted by the media in your area after the death of Travis, they asked me how this could happen, my responce was that early detection was the only hope and because screening is so poor in this country it was not likely that he would have been detected.

    I will write more later, I am on my was to MN for a large meeting on HCM... hopefully we will find ways to stop needless deaths in the future.

    God Bless Travis.

    Sincerely,

    Lisa Salberg

    President - HCMA

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: Amy Williams (---.proxy.aol.com)

    Date: 10-03-02 11:49

    Maura,

    I read your sons story on the hcma web site. I was deeply touched and saddened. I do not have a child that died from hcm, However, I have it, at least one of my children have it, and I lost my mother (Carolyn Biro) to it 4 months ago. She had a heart transplant that was not successful. She lived for about 1 year after the transplant, but the anti-rejection drugs she was on caused a brain tumor. Quite ironic really. My mother was very special. She was diagnosed at 30 with hcm after blacking out several times. I was diagnosed at 5, and my brother wasn't picked up until he was 16. My mother had such a terrible time finding information about HCA. It was even harder to find a doctor (even a cardiologist) who new much about it. About 15 years ago she founded, and was the chairman of the 1st Hypertrophic Cardiomyopathy Association (Now called cardiomyopathy Association) in England. She later helped Lisa Salberg set up the American Association. My mother fought for screening for all athletes in the U.K. Since the association was formed, many more doctors are aware of the signs and symptoms of HCA. Many patients now know that their families need to be screened (This was very rare until recently). She helped families affected by this disease by giving them answers and connecting them with the right doctors, and also other sufferers. I now work at the British Cardiomyopathy Association. Although things are better now, stories like yours are still to common. \I spoke to a mother last week, who's son died 18 months ago. His HCA had been picked up about 6 weeks prior to his death, but they were waiting to receive their appointment with a HCA specialist, who may of been able to save his life with the correct medications and treatment. The appointment arrived in the mail, the day after he died. Specialists in this condition are very rare.

    I was living in Florida, until recently, when I became pregnant with my 3rd child at the end of last year. Although I was on meds, I developed dangerous irregular heart beats. This had not happened during my previous pregnancies. I was told by 3 cardiologists and 2 obstetricians to terminate the pregnancy (I was 20 weeks). No one would treat me. So I came back to England, where I have and excellent cardiologist who specialized in HCM (Professor McKenna). He switched my meds and monitored me. It wasn't an easy pregnancy. My mother died when I was 7 months pregnant, only 3 weeks after they found the brain tumor. I never knew you could miss someone so much. I was in the hospital for a month, being monitored, before I gave birth. Ironically, I had her on August 22 - the same day your son died. I can't imagine what it's like to loose a child. It is bad enough loosing a mother. But to loose a child is the most horrific thing I can imagine. My baby has not been screened yet, but will be soon. I pray that she doesn't have HCA, but even if she does, I am thankful that I have the knowledge to get her screened, and that I know which doctors are experts in this condition.

    I'm sorry if I have been rambling on. I guess I had to vent as well. When I do go back to the States I'm hoping to be involved with the American HCA. In the States, professional athletes are screened. It strikes me, after reading your story, that high school athletes are also in need of mandatory screening. It maybe a long road, but I think that this may be a goal to work towards.

    Sincerely

    Amy Williams

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 10-03-02 13:53

    I want to welcome Amy to the board and thank her for sharing her story. Her mother and I we very close and I look forward to begining some interesting projects with Amy in the future.

    What Amy did not tell you is she has 2 other children, that there grandmother loved beyond words!

    Amy - -Your mother will forever be a mentor to me ... I can hear her now plotting, planning, moving forward... and lord knows you do not want to get in her way! SO we must move forward... we must get better screenings in the USA and we must never forget those lost to HCM, it is those memories that lead us in our battle. We know they should have been granted more time with us, yet there is some larger plan, which I do not know that I will ever understand, but we are meant to be here and we have work to do.

    Maura - your son will live forever in our hearts and his death will have not been without a purpose.

    Lisa

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    [Re: 14 yr old son DIED from undetected]

    Author: Jim Mockford (204.119.25.---)

    Date: 10-03-02 14:22

    Dear Maura:

    We are deeply sorry to hear of the loss of your son. Our daughter Laura died suddenly from HOCM at the age of 14 in 1999. She appeared to be in the best of health, was active in Girl Scouts, loved to ride horses, was a very good student, danced in the ballet and modern dance, and played the flute. She collapsed while running a short distance at the University of Victoria summer music workshop. We have wondered if we could have done something different too. How do you keep a young active child from all the things that might precipitate a heart attack? In some cases all the preventive measures may not work and all the best efforts by a parent may not save their child. Diagnosis is a beginning but there are many complexities to each individual case so we have learned a lot about something we had never even heard of until 3 years ago. Unfortunately, it seems that the age of 14 is a particularly dangerous age for the asymptomatic HOCM child. We cry whenever we hear that another family has suffered the loss of a child. So we remember Laura and others by supporting the projects that may save another child... American Heartwalk, other similar programs, and hope that the HCMA newsletter will bring news about new developments that may assist others in similar conditions. But listening and sharing with others who have gone through the ultimate tragedy is important for all of us. Our youngest daughter now 14 just passed her echocardiogram last week with no signs of trouble. It seems like just yesterday her older sister was seemingly just as healthy. So raising awareness of this disease among young people is very important. Thank you for sharing your story. Jim and Cheryl Mockford

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    [Re: 14 yr old son DIED from undetected]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 10-03-02 14:50

    Jim and Cheryl - thank you for sharing your daughter with us. She sounds like an amazing young lady.

    Look forward to more information on HCM to hit the public in the coming year. We have some projects pending that will raise awareness and hopefully stop these needless deaths.

    God Bless Laura.

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 10-03-02 14:50

    Jim and Cheryl - thank you for sharing your daughter with us. She sounds like an amazing young lady.

    Look forward to more information on HCM to hit the public in the coming year. We have some projects pending that will raise awareness and hopefully stop these needless deaths.

    God Bless Laura.

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: Julie Petitpas (---.proxy.aol.com)

    Date: 10-03-02 15:31

    I wish I didn't have to say that I understand your pain but, I can. My brother lost his life Septemeber 27,2002 at the young age of 20 years old. As like your son is was NEVER detected. He didn't even have any signs or symptoms. Well, he had dizziness and shortness of breath. It was nothing unusual since he had asthma since he was a child. The dizziness could have been from lack of eating. You see my little brother was very active. He played sports all his life and this past summer he worked for his Uncle's construction business. Last Friday he was playing flag football at his college. After getting knocked down he stood up then collapsed. He was dead within minutes. He had the help of the school nurse and EMT's on property. There was nothing anyone could do. My Father and Step Mother are still in shock and scared at the same time. Thank You for your story. It feels nice to know we are not alone.

    Sincerly,

    Julie Petitpas

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    [Re: 14 yr old son DIED from undetected]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 10-03-02 15:38

    Julie - I am so sorry for your loss. I hope you know we are here for you and your family.

    I would encourage your family to proceed with screenings ASAP to see if anyone else in the family has HCM.

    No words can heal your pain - I can tell you it does ease with time.

    God Bless your Brother

    Sincerely,

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 10-03-02 15:43

    OK now I am getting really upset everyone... I have had to say GOD Bless too many people today! Maybe the timing is good... maybe these stories will help to prove that we need more screenings maybe someone will take notice of this nonsense.... these tragic deaths... I have been working at this for 7 years and it is not stopping. WE NEED TO PULL TOGETHER!

    I am hereby seeking volonteers to begin a campain to the law makers of this great country of ours to SAVE OUR CHILDREN!

    If you can commit 2 hour per month and want to help.. email me at the address above and say I WANT TO CHANGE THE LAW!!!!!!!!!!!!!!

    Peace to all!

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: Sharon (---.ph.ph.cox.net)

    Date: 10-03-02 19:51

    Dear Maura,

    I am so sorry for your loss, Travis. My son, Anthony, died two years ago. He was at the collegiant level of sports, football player at Kansas State University, at the time of his death. My heart goes out to you, as I remember too vividly the raw pain that I felt for the loss of my son. I called your house, hoping to speak with you personally. I left my number with the person that answered your phone. We are all here together for the greater good, and I hope that there is something I can do for you.

    You are in my prayers and I know we all can make a difference as we ban together to save the children of our country.

    God Bless you and God Bless Travis!!

    Love,

    Sharon Bates

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: Sharon (---.ph.ph.cox.net)

    Date: 10-03-02 20:10

    Hello Amy,

    I am so happy to see you on the message board. Lisa has always spoken very highly of your mother and I can see from your compassion for everyone with HCM you are a wonderful spirit, too.

    I just wanted to clarify that not all the professional sports teams in the US are doing full heart screenings on the paid athletes. Some teams do ECG's (Arizona Diamondbacks, Major League Baseball), and some have added echocardiograms (New York Giants, National Football League). On the collegiant level at this time with the guidance of the Anthony Bates Foundation Kansas State University screens "most" of their athletes for HCM. The screenings have not been made manditory from all the coaches, therefore, not all the athletes are required to attend the free cardiac screening day that our foundation supplies.

    Recently, there was a sudden cardiac death on the St. Louis Cardinals, MLB, this past June. It was determined that Darryl Kyle, Pitcher, died in his sleep from "heart disease." Pathology reports stated he had coronary artery disease. Some experts suspect HCM due to the size of his heart. Long and short of it...we are not doing enough screening at any level of any of our sports figures, paid or unpaid, professional or college or high school.

    It is time to add echocardiograms and ECG's to our preparticiaption sports physicals. It is time to change the laws. I hope with the screening efforts the Anthony Bates Foundation and HCMA can help open the eyes of our legislature. We are showing a 20% heart abnormality in our events. That is a lot of heart problems that are going undetected, some of these are HCM. Early detection is the only way to prevent sudden cardiac death on our playing fields.

    Sharon Bates

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: Sarah B--Board Moderator (---.n-usslc10.stsn.com)

    Date: 10-04-02 00:56

    Dear Everyone,

    There are no words to express the hole that losing a loved one creates in your life. To lose your child or sibling or anyone this way is shocking on every level.

    Lisa and I are here at the International Summit II on HCM and Sudden Death Prevention so hearing about all of your loved ones today underscores that we are trying, we are working, but we are not yet anywhere near our goals.

    There are something like 160 doctors here --all trying to figure out how to make it stop. How to make all the sudden deaths stop. I'm so sorry they were not in time for your families. Increased awareness, better (and adequate) screening, and education are the keys to erradicating this cause of death. We can't stop them all, but we can try.I know each and every person who reads this board has two hours a month that they could spending fighting the good fight. Please join us.

    peace,

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: AMY (192.76.86.---)

    Date: 10-04-02 08:50

    I just wanted to let you know that you are in our prayers, and remember God will watch over him now! I know that does not do much cause you much rather have him with you but know he is safe and loved!!!

    Amy

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: Mary Catania (---.proxy.aol.com)

    Date: 10-04-02 13:03

    Dear Maura,

    My deepest sympathies and prayers are with you over the loss of your precious son. I, too, lost my son to undetected HCM 11 yrs. ago. He was 18, and the circumstances were the same, playing sports in school, collapsed, and died on the spot despite valiant efforts to resuscitate him. I know the anger and pain you are feeling, and the many questions you are asking. It doesn't help to hear someone say, "well, he wouldn't have been able to enjoy his life if he had to deal with HCM." The point is, life is precious, and we can make adjustments to go on living. I, too, have HCM (diagnosed one year ago at age 58), and have an implanted ICD. Although my life has changed, I have made concessions to those changes. Your son would have done the same thing. The comforting part is that our sons knew we loved them, they lived full lives, and they are with us always. I turn to my son in prayer and meditation for help when I need it, and ask the Lord to always send me his comforting love. May God bless you and send you comfort, love, and hope.

    With prayers of consolation,

    Mary

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: AARON (---.public.lawson.webtv.net)

    Date: 10-07-02 03:26

    I am sorry your son died. But I remember When i was diagnosed at 13 and the doctors said to give the sports up. I rebelled hated all the people who took

    sports away. I felt different that i couldn't participate in gym and depressed when they played sports because i was better than most of the kids in my class. I lived 4 sports and would die for sports. i am 23 and am finaly realizing that I should listen to my doctors. But the rush that I get from playing hockey is not easily duplicated any other way than by playing. I still respect the doctors decision and i know Why my parents restricted me. But whether the person listens or not should be up to that individual. I agree that they should test for the disease in every one. But unless they cure the disease I have a hard time going with the program. We are all mortal and will die some day some sooner some later. You may think you have a long life ahead but the truth is you might live to be only 130. This illness has shown me that its not all about this flesh life. its about your eternal soul. you'll see your son again

    but the body that he has then is immortal. feel free to express your feelings to me. Its a free country where I Live in. Thank God for USA.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 10-07-02 12:55

    Maura - Can you please call the HCMA offfice I would like to speak to you.

    Thank you,

    Lisa Salberg

    President

    HCMA

    973-983-7429

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: betsy trawick (---.atl.client2.attbi.com)

    Date: 10-07-02 17:22

    I am so sorry about your son's death. We too just lost our son, Evan, to HCM - a sudden heart attack while jogging in our neighborhood on July 4th. We, like you, are devastated. However, we did know of his condition. I have the condition as well as our other son, Casey, who is 17. Casey had myectomy in Dec. of 2001 - great success. My condition and the condition of Evan were of a milder form, so we thought - myectomy was not really an option for us at the time; however, our doctor was talking alcohol ablation with us in Jan. I certainly understand your anger and frustration with not knowing but it sounds as though your son lead a full and active, happy life. Our son was able to play football until he was 14 - at that time, doctors told us absolutely no way - Evan was the most devastated teenager you could imagine - you see, sports were his life! He went through a period of severe depression where he said often, if I can't play football or other sports, I'd rather die - fortunately, he did get through this difficult period and found other things, sports related that helped. We are blessed to have had Evan for the time we had him. Maybe your knowledge can help others in your family - it is a tragic condition and even when one knows they have the condition, it doesn't prevent the inevitable - the condition is just too unpredictable. Evan was asked in Dec. after Casey's open heart surgery, "well, you just may be next for this surgery." His response was "I'd rather die!" I'm glad there are other sports oriented boys with Evan in heaven and they are probably playing on one **** of a football team. I am so happy to have found this site. I have learned alot from reading other emails about people's meds, conditions, effects from meds, and alcohol ablation. I wish to hear more about alcohol ablation - tell me WHY I should do this? It certainly doesn't sound very positive.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: betsy trawick (---.atl.client2.attbi.com)

    Date: 10-07-02 17:35

    WOW - I could swear I was reading an email from my son , Evan - same sentiments exactly, except he passed away this July 4th - doing what he loved best - a form of sports. He was jogging in our neighborhood on July 4th - going for that 2nd mile when he went down. He loved sports literally more than life - was so devastated when told he couldn't play high school ball that he didn't want to live - poor thing - had such a dream of playing - he even told me as he was leaving to go off to Ole Miss - "hey, mom, guess what? I'm going to walk on at Ole Miss and finally play - they won't know about my condition there" Thank goodness that never happened - point being, he loved it and didn't really pay any attention to the doctors and the condition. It is VERY difficult to have a sports oriented, jock hear when people say, you can never play any sports - he was a state champion swimmer as a youth - a gifted athlete in every way - unfortunate for the sporting world that he had HCM. I enjoyed reading your message - he sounded just like my Evan! Good luck to you in life - you definitely have the right attitude!

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: 14 yr old son DIED from undetected]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 10-08-02 10:41

    The loss of all these fine young men is overwhelming...and likely preventable... Aaron - I know the pain in being told, no more sports, it happened to me too - but I will admit it was OK by me because I could no longer keep up by the time I hit HS. You say you wish to have the choice, the freedom to play or not to play and to die is not really the end. While I can agree with you in part there is a

    second side that must be seen. What happens to those who must stand back and watch you/a young person die? that scar stays with them forever and with the team, Is that Teamwork? What about the liability issue for the school, the doctor and the hospital after a sudden death? Why did the school let you play? Why did the doctor say it was OK to play? How come the hospital could not save you? Face it in this country we make someone responsible...someone must pay. Be this right or wrong when someone is in pain and has lost a child, husband, wife.... they want to know how and why.

    In the USA patients Doctor shop for a doctor to "let them play" and if you look hard enough you can find somone to sign off...in fact someone who is on this message board just did it for a physical for a job...they went to a "doc in the box"...urgent care center... and gave then the form and said "i feel fine" presto... a clear report and an OK to do heavy lifting!

    My point is this is very dangerous and has lead to several highly notable deaths...We in fact do not have a right to play sports..it is in fact a privlage, much like a drivers lic.

    In Italy - - players must undergo a much more detailed screening and if they do not pass.. they can not play end of story.

    Here parents can sue and ask the courts if there kids can play...in one case the court said yes you can... then the Appeals court over turned the lower court and said NO you have no right to play and schools have a right to place restrictions if they feel it is in there best interest.

    What I am attempting to say is this... 1 It is horrible to be diagnosed and have something you love taken away 2. we must learn to deal with our losses 3. we must find a way to diagnose people so they do not place themselves at higherrisk of SD 4. we must find a better way to screen mass numbers of people so we may find the condition in those who are not involved in athletics.

    I have gone on long enough.

    best to all!

    Lisa
    NOTE: This is a post from the previous forum message board.
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