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  • Cardiac meds and cognitive skills

    [Cardiac meds and cognitive skills]

    Author: Millie (---.24.223.186.Dial1.Philadelphia1.Level3.ne)

    Date: 10-02-02 10:04

    My son is 10 years old with HCM. He has an implantable defribilator/pacemaker. He currently takes nadolol 40 mgs. in the am and verapamil 180 mg. in the pm. He does tire easily and we realize it is his condition. We let him walk at his own pace or do things at his own pace.

    I have a concern now on what his meds might be doing to his cognitive skills. I've noticed he has difficulty retaining things and his short term memory is poor. I don't have this disease so it is very hard to imagine what might be going on in his little mind. He was diagnosed very early (age 7) so it might be hard for him to realize his skills were better before.

    I don't want to put him through psychological testing, yet. He already has a lot to deal with at such an early age.

    I've done some reading on both meds, but have not found any side effects that may be related to cognitive skills.

    Can anybody give me some insight on what this disease has done to you? The way you feel physically and if it has affected your ability to think and process information? This just might be another stumbling block in my son's health, but I want to make sure that it is not all related to the treatment for his condition.

    Thanks.

    Millie

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    [Re: Cardiac meds and cognitive skills]

    Author: Robbyn (---.sympatico.ca)

    Date: 10-02-02 10:11

    Millie,

    I can't answer your question, but I will be very interesed in the answers. I have found during the past year confusion in what I am trying to say. Sometimes only a matter of minutes have passed and I can't remember all the details of everythng I have said. Because I am 46 my husband says it's my age, but I don't think that's true. I have always had a very good memory. I also take verapamil.

    Take care,

    Robbyn

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Cardiac meds and cognitive skills]

    Author: Millie (---.24.223.186.Dial1.Philadelphia1.Level3.ne)

    Date: 10-02-02 10:16

    Robbyn, You have described is exactly what my son does. He seems confused sometimes and it appears he can't think straight. I'm curious - - how long have you been on verapamil and with HCM?

    Millie

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    [Re: Cardiac meds and cognitive skills]

    Author: Millie (---.24.223.186.Dial1.Philadelphia1.Level3.ne)

    Date: 10-02-02 10:16

    Robbyn, You have described is exactly what my son does. He seems confused sometimes and it appears he can't think straight. I'm curious - - how long have you been on verapamil and with HCM?

    Millie

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    [Re: Cardiac meds and cognitive skills]

    Author: Sarah B.-Board Moderator (---.client.attbi.com)

    Date: 10-02-02 10:50

    Hi

    the beta-blockers absorb adrenelin (sp?), which is an important chemical in creating memories.

    Is your son seeing an HCM specialist, because he does seem to be taking a lot of medication (from what I know of dosing) but I could be wrong. It is certainly worth a second opinion to make sure that he really needs that size of dose.

    Most of us on beta-blockers have learned to work around the memory issues or concentration issues with Palm Pilots, lists, etc etc. There is a whole thread way back in here about this.

    As for long term effects, I don't know of any research on it off the top of my head, but I'll look around.

    Take care

    S

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    [Re: Cardiac meds and cognitive skills]

    Author: Matt (---.disney.com)

    Date: 10-02-02 10:56

    Millie,

    At 30, I went into arrythmia/chronic A-Fib and began taking Coreg (alpha & beta blocker) and Prinivil (ACE inhibitor). I am now 39 and believe that these medications have affected my memory as well. I remember vague ideas as in the "big picture" but often have a hard time remembering the details. I have to write everything important down. But it does help having two teenagers who never let me forget anything, especially if it involves them and money

    Physically I am usually tired, feeling "drained" but also have a hard time sleeping. I'm very restless at night.

    But of course, this disease will affect everyone differently. Just thought I'd share since you asked.

    Matt

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Cardiac meds and cognitive skills]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 10-02-02 11:25

    OK I am gonna really confuse this one -

    Millie I do not know the answer but Will be with the right people to ask this weekend so hold tight...

    re memory - before my stroke in 1990 I would say that I had average retention on most issues and less than average on detailed numbers and math type issues --

    Well... After I had my stroke the manner in which I process thoughts, data and details are different - my recall is sharper, my analytical skills better and my memory much improved (although the first year after my stroke my short term memory was shot... then it came back.)

    Why - I have no idea, nor does anyone I ask - It seems completely out of reason that someone with brain damage (me) would have better memory than before the brain damage!

    Why do I bring this up - 2 reasons - 1. Never think something is completely bad because silver linings are sometimes found in the strangest places.

    2. Medical science has yet to answer all questions so we must remember that they call it a medical "Practice" for a reason.

    Oh FYI Millie - Many others have similar concerns to those you have raised so do not think you are seeing something in your son that is not in others.

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Cardiac meds and cognitive skills]

    Author: Millie (---.24.223.195.Dial1.Philadelphia1.Level3.ne)

    Date: 10-02-02 18:09

    I have to thank all of you for your responses. I feel a little better knowing that this may be an effect of his disease.

    Matt,

    I like your idea of writing everything down. I do this myself because I always have alot going on and need to keep myself straight. I'm to start leaving him notes to help him remember things, i.e., one on the fridge "don't forget to take your medicine.," etc.

    Lisa,

    It would be great if you can ask the experts you're with this week. I'm interested to learn if they have heard this from other patients. Thanks. Do you remember us - - my husband Jay used to speak with you frequently about our son, Jeremy. You connected us with Dr. Maron. Jay says hi. By the way, I'm hooked on this site. I was hooked before to all of the medical sites looking for information on HCM, but usually I used to feel depressed after I was done. This gives me some hope to see so many people are like Jeremy. You are truly an Angel. God bless.

    Sarah,

    My son, Jeremy, was seen by Dr. Maron in Minneapolis at Lisa's recommendation. Dr. Maron categorized him as high risk since his heart is severely thick and had a syncope episode right before we went to see Dr. Maron. He's also asthmatic which complicates matters (knock on wood - we think he's outgrowing this). He sees an EP specialist who spent time at Duke University treating some patients with HCM. He's very familiar and knowledgable with the disease. Treatment on his verapamil started at 120 mg., but soon needed to increase to 140 mg. We started the Nadolol this June '02 because he was still experiencing palpitations and also the obstruction was not improving. The Dr. had picked up a few times on his AICD/pacer that he had some unsustained VT and AFibs. Based on all of this, he thought the combination might help him by decreasing his heart rate and slowing his heart's contractions. By the way, you mentioned that there was some mention on this topic in one of the threads - - I'm knew to all of this, so how do I go back to them. Can you send me some quick steps to retrieve? Thanks.

    Thanks to all of you.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Cardiac meds and cognitive skills]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 10-02-02 18:15

    HEY How are you of course I remember you!! tell Jay I said Hello!! I am glad you found the board!

    Take care!

    Lisa
    NOTE: This is a post from the previous forum message board.
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