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Alcohol Ablation

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  • Alcohol Ablation

    [Alcohol Ablation]

    Author: Richard (---.proxy.aol.com)

    Date: 12-29-01 16:23

    Has any one out there had this procedure? If so have your symptoms been relieved? What was the procedure like?

    I have HCM with the obstruction and have been advised that I could be a "candidate" for this procedure. My doctors have tried various medication but none has help my symptoms.

    Richard

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    [Re: Alcohol Ablation]

    Author: April (---.amd.com)

    Date: 01-04-02 16:49

    Hello Richard,

    I am in the same boat as you currenlty reside in.

    I am 32, and had a pacemaker implanted in October, to no avail. My Electrophysiologist has suggested the ablation procedure and he and my Cardiologist are talking with a doctor in another city about handling my operation.

    I have read everything I can get my hands on, and it's scary, to say the least.

    My symptoms didn't begin to appear until May/June of 2000 but they have progressd since then. The drugs only made everything much worse, to the point that work, and daily activities were greatly hindered.

    I look at the possible solutions and all I see out there are the ablation, open-heart surgery to trim the septum or doing nothing. None are very appealing, the open-heart surgery increases chances of a stroke, but the ablation could be mis-handled and the ethanol could travel to other parts of my heart, or I could do nothing and take the risk of dying unexpectedly. What choices, huh?

    I have heard from a friend in another support group that she has a good friend that has had great success with the ablation. But, others I read say that they wind up having to have the open-heart surgery in a few months/years anyway. There doesn't appear to be a significant opinion for either.

    I know I haven't been much support in this email, except to say 'You're not alone'. Whatever I hear, good or bad, I promise to send on to you.

    Hang in there and keep up the good fight.

    April

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    [Re: Alcohol Ablation]

    Author: Russ (---.citlink.net)

    Date: 01-06-02 01:24

    I, too, have been told that I should have this procedure. I have looked on the internet and haven't found much recent information on this procedure. I would be interested in getting recent statistics or some doctors views on this procedure.

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    [Re: Alcohol Ablation]

    Author: bonnie (---.proxy.aol.com)

    Date: 01-07-02 17:31

    I HAD ALCOHOL ABLATION DONE JULY 2001. THE PROCEDURE ITSELF IS NOT VERY PAINFUL. THE MUST PAINFUL WAS THE SORE THROAT FOR DAYS AFTER THE PROCEDURE. I WAS BACK TO WORK IN THREE WEEKS.

    A WEEK AFTER THE SURGERY I WAS WALKING A MILE A DAY. THAT WAS NOT POSSIBLE BEFORE. SLOWLY I HAVE BEEN GETTING TIRED, SHORT OF BREATH, AND MOST OF MY OLD SYMPTOMS AGAIN. MY DOCTORS TOLD ME THAT NOT ENOUGH OF MY MUSCLE WAS DESTROYED AND THAT I SHOULD HAVE THE PROCEDURE DONE AGAIN. IF I DON'T GET IT DONE AGAIN THEY SAY I NEED OPEN HEART SURGERY. I DEFINITELY AM THINKING ABOUT HAVING IT DONE AGAIN. IF I CAN BE OF ANY HELP LET ME KNOW.

    BONNIE

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    [Re: Alcohol Ablation]

    Author: Jerilyn (---.tnt1.joliet.il.da.uu.net)

    Date: 01-08-02 10:26

    Last year I was diagnosed with HOCM and like many others it seems to be getting worse. I am taking verapamil and it helps, but I still have frequent attacks where it is hard to breathe and my chest hurts.

    My cardiologist at Northwestern Hospital in Chicago, Dr. Bonow ( a specialist in treating HCM) has suggested that I have the open heart surgery to correct the obstructive part of my heart. He feels that the ablation procedure has not been perfected as of yet and he he is not a big fan. He says studies show that the surgical procedure has been more reliable. He also recommends that I have the surgery done at the Cleveland Clinic, as they do more of this type of surgery and they have not "lost" one of his patients.

    Granted, the thought of open heart surgery is very scary, but if I am going to undergo any procedure I only want to do it once. For my money, I think I am going to go for the surgery if my insurance company will agree to it.

    Take care,

    Jerilyn

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    [Alcohol Ablation-Get it done!]

    Author: Amy Woods (164.119.203.---)

    Date: 01-11-02 11:14

    Congratulations! What a great opportunity to finally start feeling better! I know it's pretty scary, but VERY worth it!!!

    James and I had to go to Houston to have the procedure done as Dr. Spencer was the only one doing it in the US. I was admitted and they did all the prep work, IV, monitors, etc. The operating room had alot of people in it, which isn't very soothing. They prep the groin area, where the cath. will be inserted. This was a bit embarrassing, but they were modest about it. So once the cath is in, they bring over all these TV screens so they can inject dye and watch where it goes. This is cool cuz you can see the TV screens too. Once they are sure they have the cath in the right place, they inject the alcohol. Now I won't kid you here, it did hurt. Dr. Spencer said, "ok, now you're gonna feel some pressure in your chest." He didn't say they were gonna park an elephant there. It hurt, I cried, but it only lasted seconds, then the pain was gone. They then had to reposition the cath. and do another section. Same thing as before. The whole thing lasted 2-3 hrs.

    They sent me to the ICU for recovery. Here's another yucky part. They put a pressure bandage on your leg where the cath went in. I didn't realize how much pressure was needed until the nurse brought out a "C-clamp". This also hurt, but didn't last long. I was sent to another room that afternoon. I was in the hosp. for a total of about 48 hrs. I was told to do nothing for a week. No driving, working, sexual relations, cleaning.... That lasted about 2-3 days! I felt sooooo good, I had to see what I could do without getting dizzy!

    The results were immediate, my gradient went down to zero and I had absolutely no symptoms after that. I already had a pacemaker before the procedure, but it is shut-off. I don't need it at all. I'm on no medication either. Before the procedure I couldn't do anything without getting dizzy and blacking out. I had to walk very slow, climb steps very, very slow, stand up even slower. I didn't even think about doing any exercising. The dizziness, heart palps, chest pain, shortness of breath was just to much to warrant any physical exertion. I had these symptoms from age 18 upto the day of the procedure 6 yrs later. Now...I play volleyball, rollerblade, swim, chase after the dogs, fly kites, run up a flight of stairs (or 2!), anything I CHOOSE to do.

    I've had no complications, no return of the symptoms and the IHSS has not developed into other problems (like my mom had). I can't express to you enough how much I've improved and how the pain really was worth it. I was a 20 yr. old in 90 yr. old body. Now I have my life back.

    Praise the Lord and thank the Doctors!

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Alcohol Ablation]

    Author: Charles Farris (---.dsl.hstntx.swbell.net)

    Date: 01-12-02 23:26

    Richard:

    I had the procedure done in September 1997 in Houston TX. My gradient at the time was 100 and I had no quality of life. The procedure left me with a gradient of 60 and although I felt better, I was still quite limited in my activities. I had the procedure repeated in November, 1997 with outstanding results, a gradient of “0”.

    I went for my 4 year follow-up last month and am happy to report that my gradient remains at “0”. I am off all medication and am free to do what ever I like (no limitations or restrictions)

    I would recommend this procedure and have it done again myself. It has been the greatest thing to happen to me. I got my life back.

    Dr. William Spencer in Houston TX did the procedure as part of the Alcohol study. His home office is in S. Carolina now I believe, and comes to Houston once a month for procedures and follow-ups.

    If you have questions or would like more information, don’t hesitate to write.

    Charles Farris

    Pasadena, TX.

    [email protected]

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Alcohol Ablation]

    Author: sanjay Radia (---.sun.com)

    Date: 05-28-02 18:53

    You mentioned that slowly the symptoms have come back after the

    alcohol ablation treatment. How many months/years was this before

    the symptoms returned?

    Thanks

    sanjay
    NOTE: This is a post from the previous forum message board.

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