[Update on my family]

Author: Amy N. (---.tnt3.seymour.in.da.uu.net)

Date: 09-27-02 00:43

My dad got the results back from his echo and he has a septum size of 1.6. They've put him on Atenolol, which is what my son is on also. He just returned the holter yesterday, so he is waiting for the results on it. My father hasn't talked to the doctor yet. When he picked up the prescription, the nurses couldn't even tell him what the medication was for. I am becoming quite frustrated with the waiting. Is it normal to have to wait soooo long for results? It's been four weeks since I went and two weeks since my dad went. I assume the doctor will talk to my father after he gets the holter results, but I just wonder how long that will take.

So I'll keep waiting and try really hard not to dwell on it. The good part is my son has adjusted quite well to his medicine. It doesn't slow him down a bit. And I think he's even getting use to the taste.

Amy

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[Re: Update on my family]

Author: Sarah B.-Board Moderator (---.client.attbi.com)

Date: 09-27-02 01:08

Dear Amy,

Every office is different, but four weeks is a long time. 2-3 is normal/outside. I would give them a call. When are you all going to a specialist?

take care,

Sarah

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[Re: Update on my family]

Author: Lisa Salberg (208.47.172.---)

Date: 09-30-02 15:43

Well... sometimes I really hate it when I am right... How is dad dealing with everything?

I would call the doctor back and see what is taking so long.

Best to all!

Lisa

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[Re: Update on my family]

Author: Amy N. (---.tnt2.seymour.in.da.uu.net)

Date: 09-30-02 23:05

I don't really think my dad understands exactly what's going on. I'm hoping the doctor contacts him this week. There are some things on his echo that I don't quite understand and am a little worried about. (Dialation of the right and left atria for example). I hate to say to much because my dad mentioned my mom hadn't been sleeping well. So I don't want to worry her too much, but want to make sure my dad's being treated correctly. I'm going to wait to see what the doctor says, try to get my sister to move a little faster on getting her echo done and then evaluate the situation once more.

My son isn't to go back to the doctor for a year. Is this an acceptable time period? The doctor he saw sees only about 5 patients with HCM and a few of those are under 2. That makes me a little nervous even though I liked the doctor. I've got to figure all of this in when I'm evaluating what to do next.

Amy